It's not what you are eating, it's what's eating you…

Archive for November, 2014

“If only I had a little bit more time”…./It’s NOT enough….


zachsobiech

http://www.childrenscancer.org/zach

Again, I’m on my final day of my 2nd campaign on social media to raise money and awareness for The Zach Sobiech Osteosarcoma Fund, with mixed feelings of relief, anger and gratitude.

I had to really think about whether or not I wanted to be associated with this at all, let alone to the degree that I’ve associated myself with. I’m better suited for the activism I do regarding medical, mental health, anti-bullying, body diversity, homelessness, etc.

It’s not that I had much to lose, I live kind of a small life. I did think though for someone with my barriers, even though I’ve now said ad nauseum in EIGHT different blogs, of why raising money for children’s cancers and Zach Sobiech means so much to me.

Here comes the anger part. I knew when I decided last month to do this again, as a token for a multitude of reasons, to raise money for The Zach Sobiech Osteosarcoma Fund, that people, may not want to hear about it anymore. While my social media buds were great both 6 months ago when I did this, and again, the last half of November of 2014, society at this time of year, really isn’t receptive, at least from ME, hearing about why it’s still important to raise money for research for Osteosarcoma. In honor of Zach Sobiech and ALL children who have fought Osteosarcoma and “really didn’t lose”.

Whether or not they lost their lives from it.

But it still didn’t get the attention that I thought it would. My 2nd campaign. And for that I’m super disappointed.

I had to think real hard of attaching myself so strongly to this. I’m this strange, wordy, Jewish, smoking, disabled activist who lives about 40 miles away from the Sobiech family.  There are other people doing this, locally. Not many people, though. There will be another concert next week at Mall of America, though. Why me, then?

Because his fund isn’t getting the attention, I believe it should. So why not me? I just wish others would join me in trying to raise money and awareness.

All these kids and families who have to battle children’s cancers want is another day. Another birthday. Another holiday season, with life and hope.

To achieve that, takes money and research for causes and for treatment and a possible a cure for all.

So I’m doing one last STRONG push to raise money and awareness for The Zach Sobiech Osteosarcoma Fund. Do something in gratitude that your kids don’t have cancer. Do something in honor for those who you know have had a child who battled cancer. Just do something, ok?

Because ignoring the fact that children have to battle and die from cancer, doesn’t make it any less of a threat. And to support the kids and families who have to battle this, needs more than empathy. It requires a lit bit of money and time from all of us, to help fund the research necessary, to have any chance in curing cancer in all kids. So if you don’t want to donate money to The Zach Sobiech Osteosarcoma Fund, do it with another children’s cancer initiative.

I can live with my almost 45 year old self ,that I tried, but failed at raising the money and awareness for The Zach Sobiech Osteosarcoma Fund. I can’t not do anything though, from now on, as an activist (and a mother of 2 healthy children) that I will going forward, in the future to do this when I can. Again, as I said, from my very first Zach Sobiech blog, he and kids like him at Fairview, changed my life.

That’s why it’s NOT enough to do the activism, I’m better suited for. It’s NEVER going to be ok,  that kids have to battle Osteosarcoma whether they live or die. Please donate or share the many Zach Sobiech links that I’ve shared.

Thank You!!!!  Happy Holidays…………..

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My Holiday Season-2009

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In my more personal blogs vs. activism, I think I’ve kind of made it clear, I’m kind of way stuck in the past. Specifically, of where I was, EXACTLY 5 years ago.

With my memory issues, I was hoping initially that I’d forget the time I spent in the system. But I’m realizing whether I like it or not, it’s serving a very important purpose as I move slowly forward in my life.

What was I doing Thanksgiving 2009? Not much. I spent midday Thanksgiving of 2009 at a drop in center for the mentally ill (Vail Place in Minneapolis). That evening there was another Thanksgiving dinner at the group home,later that evening .  I had already received finally, in the beginning of November of 2009, my 1st SSDI check. It was quite painful to sign over $900 of the $1,001, that I had received,to pay for my crappy room (and board)  that I shared with 2 other people at the group home I was living with. (note: It cost me $900, however it cost the county an additional $600 or $1500 a month, as prior to getting SSDI, I had been on General Assistance since I left the hospital, post suicide attempt). However time was moving by, oh so slow, as I impatiently awaited my backpay.

So, imagine living on a $101 a month, knowing that sometime,  you were going to receive several thousands of dollars in back pay. It really wasn’t the money I was waiting for, it was my FREEDOM. Because of missing some medication passes, I had been restricted for months, on not being able to leave the group home for an extended period of time (more than 4 hours).

Holiday Season of 2009 was my SECOND holiday season spent in the mental health system, though. The year before though,I had been in a 90 day inpatient intensive behavior treatment group home, that was slightly less scary, than my current residency in a group home that was for people who long term needed assisted care because of severe and persistent mental illness being a barrier,of them being able to live independently.

Thanksgiving came and passed. Then 6 days later, it was my 40th birthday. Which I celebrated by  having a delicious (dripping copious amounts of sarcasm) dinner consisting of having mushroom swiss Angus burger from McDonald’s, that I’d end up puking my guts out (the psych meds while I was being weaned off of most by early December of 2009, caused a wicked binge and purge cycle, even though I was almost 8 years status post gastric bypass, this was 9 months BEFORE what would end up, of my getting reversed, which I had NO IDEA that would be an issue in the future) by myself.

I found it kind of funny that in both group homes they celebrated St. Nick’s Day. While I understand the sentiment, it was kind of funny to see a bunch of people who where their medications and a lot of sugar was an interesting combination. It was less funny in me, given the fact I was in that binge/purge cycle and still dumped from sugar, caused quite an ugly reaction (projectile vomiting).

Christmas of 2009 came and went quietly. That also was spent at the group home and later that night, at a local church with friends from the group home, that offered Christmas Dinner to the indigent . A couple of days later, knocked me for a loop. In a VERY good way. When checking my balance, of my checking account, to see if I had enough money for a pack of cigarettes, I had about almost $10K that I should’ve known was coming, but kind of gave up.  Two days later,  New Year’s Eve of 2009 was spent  at a dentist appointment,checking out a condo in Plymouth for rent, which I saw, wrote a check for and then promptly moved out of that group home, next day on January 1st, 2010.

Now, all of this is in my very 1st (ranty, wordy, not capable of any logical sequence in order of thought)  blog on here, on WordPress. It bears repeating, for multiple reasons, though. Especially THIS holiday season, for ME. For someone who nearly lost their life, multiple times in the last couple of years (only once was due to mental illness, the other near death issues were medical) I know how lucky I am, to still be alive.

This blog was not written to do any type of activism. It probably explains more of why I’m passionate about the activism that I do. It also reinforces why I take nothing and no one for granted. But I NEVER did. Maybe the one thing I did take for granted was my freedom. But I had no mental health or legal history before the age of 38 1/2.

So, what will be I doing this Thanksgiving in 2014? Due to having a bad cold, I will be celebrating it quietly by myself. As I don’t want to make anyone else sick.  While most of the holidays (including my birthday) in 2010, I was by myself as I was still quite sick, after my gastric bypass reversal, the last several years the holidays have been spent with my boyfriend and his family and then stopping by my parents house and seeing my children .

I started a tradition that came from when I first moved out on my own, New Years Day 2010, after almost 16 months in the mental health system. It’s a “gratitude” tradition. Kind of quirky, but I actually thank everything that I have, and everyone I have, often. Not just on the holidays. While I’m sure, I’d look strange if I was thanking my bedding and my television (among many other things), in front of anyone else, I couldn’t care less.

There was a time when I had absolutely NOTHING, in 2008 to the end of 2009. I had to start at ground zero in 2010 and rebuild a life with a lot of medical and mental health barriers. Not only did I lose almost all my material possessions, but what I lost in abilities and in freedom. And I did rebuild a life, one I never imagined, while it’s not of my dreams that I had in 2004, it’s not of my nightmares of what my life was like in 2008 and 2009. SO,I know how lucky I am, to have what I have in my life, not to mention, WHO, I have in my life. My children. My family. My friends. My boyfriend.

And the freedom of choice. I couldn’t be anymore grateful this Thanksgiving of 2014 for that and everything else.

Happy Thanksgiving!!!!!

#BlurredLines

kevinhart

***I ask if you choose to read this blog, that you read the whole thing. And if you are a new reader not familiar with me, that you do not penalize me for my cognitive disabilities that prevent me from writing well, as a disabled blogger and making an inaccurate assumption, that I’m not capable of intelligent thought, as a result.

That says more about YOUR bias, then it says about MY abilities, lack of them and barriers, which I’m fully aware of them.***

*** And NO, this blog is not in reference to the Robin Thicke “ditty” that’s been viewed on You Tube about 350 million times, well not directly***

I, unlike most people on social media have not commented on Ferguson. AT ALL. Not that I haven’t had an opinion, it’s just not a popular one. That’s about to change with this blog, though. I’m finally chiming in, but I’m sure that what I have to say will offend many. Hopefully people will understand that it’s my intention to help, not hurt anyone.

While I have a tendency on my blog to stick to medical, mental health, body diversity and anti-bullying activism, I find on social media and within myself, transitioning into being more into overall human rights. Meaning, I don’t believe in prejudicial words and/or hateful words and action being thrown on anyone due to race, religion, gender, sexual orientation, size, or physical and mental health disability. And as a disabled activist, try to use WORDS for greater good, for people.

In my case, the single person I spend the most time with in my life and offline, is NOT on social media. AT ALL. Doesn’t like Facebook, Twitter or any other forms of social media. It happens to be that would be my boyfriend of 3 years. I don’t talk about him very much on Facebook (which is the preferred social media venue of my choice) too much and I’m not Twitter, a whole heck of a lot.  And this is the first time I’ve mentioned him on my blog, because while  I’m not a famous activist, I’m quite a public one of what I’ve chosen to divulge of my life and leave it to me, to find the most private person on the planet and be in a relationship with them. I’m digressing but I’ll make my point, sooner or later. As this very tidbit has relevance in a point I’m trying to make and one that I have both subtly and not so subtly since I’ve started blogging, and way before as just an activist on social media.

BUT… Because I am disabled and spend most of the time alone, when I actually see my boyfriend, it will take me 90 million words and updates about current events and what I feel about how everything on social media is newsworthy, usually for about 2 seconds. And things that should NOT be not so newsworthy (i.e. Robin Williams’s death and all the personal and media speculation in the last 3 1/2 months since then) that’s a huge invasion of privacy, people can’t shut up about. I can’t shut up about that people are getting “tried on social media” and it’s definitely, a trial by fire, while metaphorically, it probably mentally isn’t much less painful.

This is what I have to say about Ferguson. It could have happened ANYWHERE. That fact most people get. What most people don’t get that it’s not a race issue. It’s a RAGE issue. And this is what’s REALLY pissing me off about the whole matter. (I can’t and won’t comment or even hold an opinion about either Officer Darren Wilson or Michael Brown. Was not there. Anything else would be speculation)

Before anyone even thinks to say back to me, “well you’re not black”. No, I’m not. HOWEVER…I am an unattractive, poor, white, fat, JEWISH, medically and mentally disabled female who lives in an area of Downtown Minneapolis where I’m in the minority, in multiple ways. I have an idea of what it’s like to be profiled and be subjected to constant prejudice. My whole entire life.Just not by the local police. But pretty much by EVERYONE else.

This needs to be said as an activist and I’m choosing my words VERY carefully. I do get that black people are profiled and experience a ton of bigotry and I find it revolting.  There’s NO “but” in that last statement. However the biggest threat to someone’s who’s black, their lives,livelihoods  and their safety is NOT the police, it’s unfortunately another black person. Black lives DO matter. So do white,native american, mentally ill,  gay, Muslim, fat people’s and thin peoeples lives. ALL OUR LIVES MATTER. Let’s not go into whether or not people have a choice in being who they are. And hating on them or subjecting them to so much hate. That’s most of the world’s problem, right now in the digital age. We are failing to see people as human beings. Instead we see stories that we either relate to or we don’t. And then we judge harshly. People are losing the ability to differentiate that people are human beings in the digital age.

Until most of the world understands that people are people, that RAGE, INDIFFERENCE and a lack of EMPATHY, is what’s killing lot’s of people, nowadays and finding ways to reach people who are capable of violent harm, and intervene, evaluate and treat those people, not much is going to change. We STILL  are going to keep getting in our newsfeeds stories about parents killing kids,kids killing their parents, kids still getting shot and killed at schools, people getting shot and killed at their workplaces and shopping malls or in front of or in their homes, getting in a fatal car accident on their way home from work and people running over a pedestrian because they are busy multitasking while operating an automobile and another kid is going to commit suicide from being bullied for being too fat and or will die of anorexia and another child dies from cancer. THIS HAPPENS EVERYDAY!!! Where is everyone’s self righteous indignation for all of that??? Where’s the peaceful protesting for all of that??? Seriously, what the FUCK is wrong with everyone???? Where are the initiatives we so badly need now in our society so this finally stops becoming so commonplace in our daily lives, so most choose to ignore it???

We unfortunately, BADLY  need initiatives in this day and age, that people’s actions and words when hateful have consequence on people’s lives, to prevent this from happening over and over again. Whether it’s impulsive or planned. No loved one or stranger has the right to harm another physically or mentally. Unless it’s in self defense, which some of this is about. But if you’ve never experienced rage from a stranger, and I can’t say that’s what or what DID NOT happen here, you would realize that rage in itself is deadly. No OTHER weapon is needed, but others who are capable of rage, anything other than their bare hands can and will be used as a weapon, ONLY to insure loss of life.

So what is this  reclusive and disabled blogger, is asking of everyone, this Thanksgiving Eve in 2014??? Start seeing people as people. Not playthings or something for you to judge harshly for you to make yourself feel better. Realize all the outrage you show for Ferguson won’t matter on social media, if you are texting and driving pissed off to get your 8 year old a new I6 phone and if it requires shoving and pushing others or just giving them a dirty look, you aren’t the saint you think you are on this “Black Friday”. If you carry bias and hate about one classification of people, but not another, that isn’t your “Get Out Hell” free card. Stuff that is American specific is why third world countries laugh at Americans, justifiably so. We live in the world’s greatest nation, for the most part and we are the most ungrateful hypocritical people on the planet.

So if you want to change the world in a positive way, that’s great. Start with Ferguson, just don’t END there. Positively and peacefully advocate for a more peaceful non hateful world and  life for EVERYONE…..

Because either you believe ALL LIVES MATTER or you don’t…. Period…  (and note, I don’t have empathy for people who are violent)

Day #4 ….. Zach Sobiech,18 months later…..

I knew I’d hit a wall when trying to raise money and awareness for The Zach Sobiech Osteosarcoma Fund. Although I am grateful for friends who have donated and/or shared links.

We live in a society, that has a fairly short memory. People are busy, I get it. It’s the holidays now and children with cancer is kinda depressing… The thing is though, there is so many things about Zach Sobiech and how he lived his life, so wise beyond his years, that’s inspiring. As well as the kids who may have won or lost their battle with cancer the last time I saw them in 2010 at Fairview or since. On and off any hospital campus around the world.

There’s not many things that  I actually get to be proud of, given my life circumstances. I am proud of the blog I wrote EXACTLY 6 months ago, on the 1st anniversary of his death of nailing why this not only was important to do for me, but where Zach’s story could help inspire anyone, to want to do better. And be better. And if part of wanting to do better is finding a cure or less invasive life extending forms of treatment, for kids who have children’s cancer, I don’t know why anyone wouldn’t want to be a part of that.

Here’s the link for my blog that I wrote 6 months ago regarding Zach:

https://unstapledlisa.wordpress.com/2014/05/20/reflections-of-a-temporary-childrens-cancers-activist/

While there’s a “recommended” amount on the website at http://www.childrenscancer.org/zach , you can donate what you afford. What you’d spend for a cup of coffee at Caribou. I donated what I’d spend on a lunch. Or share a link regarding children’s cancers in honor of Zach Sobiech. And his family and friends who shared so much of themselves. Where as I’ve said before, on my blog, social media and I got to say to Laura Sobiech at her book signing, 6 month ago, that while children’s cancers are an example of something that’s one of the most wrong things in this world, Zach Sobiech, his family and friends are an AMAZING example of what’s actually right in this world.

The best way to honor them all and thank them is by honoring Zach’s wish that they find a cure.

Please donate or share Zach Sobiech links, this Thanksgiving season.

Thank You!!!!!

A “KANTEKEROUS” KASEN VS. The KARDASHIANS….

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People who read my blog and/or follow me on social media, know that while I am a serious activist, that I can’t be in serious activist mode all the time. And that I have a pretty good sense of humor, if I am not complaining about something.

I do blog about celebrities, on occasion. Whether it’s my contempt for the unscrupulous trio of Dr.Oz, Dr. Phil and Dr. Drew. Who make a lot of money exploiting people, which I find despicable. Sometimes even Ms. Winfrey (cause it’s her FUCKING fault about 2 of the 3 have the careers they do, but I still respect Oprah, A LOT) but I still have enormous amount of respect for Oprah Winfrey …. Okay, but I get asked, why do I even care about the Kardashians/Jenners/Kanye West, anyways? If I don’t like them, why don’t I just fucking  ignore them?

To ignore the Kardashians is FUCKING IMPOSSIBLE. That’s the FUCKING problem. Going off social media, FUCKING isn’t enough. Shutting off my smartphone isn’t FUCKING enough. I have to not watch television. Not even FUCKING Netflix. Because I can be isolated from ALMOST everything and then lo and behold there’s FUCKING “Armenian Barbie” (Kim) RUINING  what would’ve been a GREAT Netflix binge of Drop Dead Diva. As someone who ONLY makes FUCKING less than $12,000 a year, and can’t FUCKING leave my cute but humble 280 square foot studio, that easily, I really FUCKING RESENT, everything that I have to do, to FUCKING avoid them.

How does everything that they DO, become news and noteworthy, anyways? Some people compare them to “American Royalty”. And then people wonder why FUCKING society has gone TOTALLY straight to HELL. While I’ll probably chime in a more serious blog about some of my insights into people NOT being able to discern digital and offline reality.

But make no mistake about it. This IS a FUCKING serious blog.

While I don’t get the actual HATE that they get, where their lives are threatened, they’ve got people though. If you FUCKING love them or loathe them, they are laughing at all of us, all the way to the FUCKING bank.

I’d be FUCKING lying, if I ran into a network studio executive (and it would have to be HBO, cause I’m not FUCKING suitable, AT ALL, for network television and I’m also NOT THAT FUCKING DELUSIONAL) who wanted to offer me a $2 million dollar, 20 episode deal to do a reality show called FUCKING “Breaking Bipolar”, I’d be there. In a FUCKING heartbeat. I’d fucking hate myself, but I’d rather fucking any day, FUCKING hate myself RICH, than FUCKING HATE myself, POOR. So I get it, to a certain extent the escapism, these people provide.

But it’s NOT FUCKING ENOUGH for them. Who FUCKING aspires to “break the internet”, anyways? I’ve got FUCKING news for you. The internet is ALREADY really FUCKING BROKEN!!! But literally? Just because someone has an amazing ass and a great rack? That’s what we are teaching girls and boys, men and women of what’s really FUCKING important. And it’s FUCKING sticking as a lesson for all of us and it’s a REALLY bad FUCKING lesson!!!! It’s like we have FUCKING national narcisstic/voyeuristic thing going on with them and it’s FUCKING frightening. Or at least YOU fucking do.

Where’s Rob, FUCKING anyways? Oh he doesn’t exist and has been FUCKING exiled, because he’s not pretty and/or perfect enough to keep his “Kardashian Kredentialing”. Bruce, I have no idea of what to make of. And Kanye’s music is just FUCKING HORRIBLE. If you don’t believe me, you can watch the FUCKING auditory and visual nightmare that is “Bound 2”. Uh Huh, Honey?!?!? Yeah just don’t come FUCKING whining to me, as you can’t FUCKING unsee this and unhear it, if you choose to check it out. My FUCKING “koncious” is “klear”. Just remember Kanye is rolling in the dough and he’s gotta be one of the most BIGGEST FUCKING misogynist assholes ALIVE. (Updated 2/10/2015) And how about we just ban him from EVER attending the Grammy’s, again??? Yo’ Kanye, Beyonce can speak for herself, OK???

I don’t have a great love for Jay-Z and Queen Bey, but at least they have some, if not quite a bit of talent, to back up their egos that fucking ate the universe. Not to mention discretion. The Kardashian/Jenner/West clan, has NONE of that.

So what’s a person do about something like this, anyways? Don’t actively HATE or LOVE them. There’s is where FUCKING apathy would work wonders, in seeing a lot less of them……

You’re FUCKING welcome!!!!!

The Children’s Cancers Activist Returns….

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In honor of showing gratitude for the month of November, and it being Thanksgiving, I had a made a decision last month that the last half of November I’d try raising money again for the The Zach Sobiech Osteosarcoma Fund.

Given the nature of the activism, I normally do with Mental Health, even though I’ve written now, FIVE blogs of why I’ve decided to raise money for Osteoscarcoma in memory of Zach Sobiech.

I still get asked WHY. Both by social media peers and my “in real life” peeps. This is my reply. It’s as easy and as complicated as that, I turn 45, two weeks from tomorrow and I was able to leave after an enormous amount of time spent at Fairview University Medical Center, four years ago and can still live my life. But as I’ve said in past Zach Sobiech related blogs that I saw so many sick kids at FUMC before Amplatz opened. And talked to their parents. That it makes no sense for kids who lose their lives children’s cancers, why they still do, when we can Skype with astronauts on the Moon. But there’s no cure yet.

For whatever reason, when I found out about Zach Sobiech the day he died via People.com’s website,on 5-20-2013, his music and his life changed me for the better. It didn’t cure me, that’s why I will always will be better suited to the activism I normally do. But I’ve never been inspired to try and be a better person from someone I’ve never met, like I’ve been by Zach Sobiech and while I was able to thank his mother, May of 2014 at Mall of America, it will NEVER be ok, that I can’t thank Zach.

If we could’ve raised though a dollar, every time, someone’s watched one of his videos on You Tube, we could’ve raised millions of dollars now towards a cure or less invasive life extending treatments for Osteosarcoma and other childhood cancers.

So I am AGAIN asking my social media peers, actually, ANYONE to donate money to The Zach Sobiech Osteosarcoma Fund, like I did this past May. I will be doing this until the end of November. So expect more blogs and video links. And me asking for you to share links and donate money, if you can.

While I hate asking for money, I HATE children’s cancers even more…. That’s why I donated again and you should too…

Thanks!!!!

http://www.childrenscancer.org/zach/

A Reminder of why I do Size Acceptance……..

Okay…. I just received HATE in the form of fat shaming for the first time on my blog.

I don’t know why I am so shocked, but I kinda am. I mean a troll is a troll is a troll…

But still? REALLY? Okay…..

Let me clarify something, my health is for NO ONE to judge. I’ve made it people’s business because I am an activist of sorts. I do not though have any health issues that are erroneously attributed to fat.

I’m not trying to start a war with my adored weight loss surgery peers for what they do for Obesity awareness. We kind of have enough mutual respect to agree to disagree.

When there’s one medical condition that only people who are considered overweight, obese, morbidly obese or super morbidly obese get that thin people DO NOT, I’d still have trouble buying it.

So I ask of my wls peeps or people with fat bigotry issues, to “check them at the door” in my digital spaces. If seeing a fat person eating a Big Mac (which I’ve NEVER ate) fills you with revulsion, you don’t know that the thin person eating a Big Mac, right next to them, could be the person with diabetes, high blood pressure and high cholesterol. You’re justifying your hate of fat, based upon aesthetics. Not based upon health, which you cannot tell, just by how much space that another human being takes up.

If you are that concerned about weight issues, as it applies to health, then be a human being, with empathy, to have concern for all weight issues. People die every day from Anorexia. Let’s not shame body types or pit them against one another. Thin bashing ain’t ok, in my spaces, either. I’ve had “justfiable” body dysmorphia since I was 4 years old. Enough already!!!!

Most of the time I can ignore the hate. So really taking the time to hate on me on my blog, Facebook, Twitter or my personal email address, isn’t going to result in very much.

If I’m bored though, and/or you REALLY looking for a fight, BRING.IT.ON. I’m kind and empathetic, usually, because it’s a conscious choice I choose to make. Really wanna provoke me and well, you’ll find out the hard way, that isn’t really isn’t the best way to utilize your time or mine. And I don’t take kindly to cowardly and cruel internet trolls, if I can’t ignore them.

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