It's not what you are eating, it's what's eating you…

Archive for the ‘“md-ptsd”’ Category

“State of Misgrace”……

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(pic of me taken at Downtown Minneapolis Target) 7-1-2017.

Here’s what Google and search engines terms on WP tell me what you wanna know about me:

IF you’re a fat person hater (more about that, in THIS blog), Yeah, I am fat as fuck, over 15 1/2 years after gastric bypass surgery AND my sentence syntax still sucks, as well as YOUR search engine skills (and YOUR psyche) really SUCK, as I’m not hiding on social media(um ever hear of Facebook where my profile and pics is public and there’s like 2 people with my name out of 2 billion and only one “unstapledlisa on the planet, you dumb hateful fuckers) , this is far from the first/current full body pic, that you’ve managed not to found out about me, or anything else “hateable” about me.

IF you’re a weight loss/weight loss surgery peep who hates on people in the community (many of you don’t, that’s why I still co-exist in the wls communities :)), I ALREADY know you won’t EVER be like me, with complications and more importantly, that you won’t ever gain ANY of your weight back, like me AND at 2 1/2 years status post of weight loss surgery of your choice( the average length of time post surgery of my community of wls haters) , you ALREADY know everything, so congrats on both your XXX lbs gone FOREVER and being a bariatric surgical PRODIGY!!!

And fucking FINALLY, if you’re a Fat Acceptance advocate, I still defend my right to lose weight and anyone’s elses and find thin bashing STILL just as repugnant as fat bashing and/or not accepting and being respectful of people’s right to do with their OWN bodies, their business, so yeah, I’m epically failing as a FA, too.

NOW that we got the fun of BODY POLITICS outta the way, wanna talk about just good ole fashion “normal” (heh!) politics????)

***Trigger Warning/s: Even though this blog is more of an update/personal nature blog than activism, because I talk about serious subjects, even when I’m venting/ranting, which if a picture explanation, is just THAT wordy and ranty, I have a feeling that this will be much more of a “fun” blog to write, than it will be to read.

It’s too bad  I can’t rent my blog/me out, as a sedative.

HOWEVER, even when “venting” , I talk about serious subjects and sometimes when NOT in “activist” mode, make a little fun of them (my own issues). IF you’re easily triggered by serious topics and/or are a danger of hurting yourself or others, PLEASE seek professional help in acute care facility for evaluation and treatment. Also, if you’re triggered by profanity, please don’t read. Thanks!!!!***

Okay, with above business being taken care, I’m kinda pissed that I couldn’t title this blog “Fuck You 2017 and Fuck You, 47th year”.  Like I did with my birthday blog from last December. Well, I mean I could, it’s still a free country (no,not really) and there is still freedom of speech (no, not really, EITHER).

It’s more like there’s consequences (depending on who you are and I think because of KARMA (which I’m still NOT sure I believe in) or not, depending on who you are, or who you aren’t.

Or a scary amount of disproportionate consequences (or not) from your actions or lack of actions, regardless of how well meaning, misguided, to the downright evilness of intentions, depending on the person.

That’s the FUCKING problem, I’m dealing with, nowadays. I know what my problems are, genuine and irrational. I know how lucky I am, in a lot of ways. I’m still ALIVE, everyone I love the most is still ALIVE and my life is NOT the LIVING HELL that it was in 2006 to 2011.

But as the oldest and ongoing winner of the Ms. “has a fucking frightening lack of responsibilities in the” Universe pageant, my life ain’t the fucking bowl of cherries, it should be.

Or it’s one that I keep choking on the pits, so to speak.

When I think of my life, exactly 14 years ago, I was a full time employed single Mom of 2, with a great new baby girl and an awesome almost 11 year old son, who just returned back to work, after a 3+ month maternity leave (DAMN, I USED to be really good with money, among a zillion other things, then) my life wasn’t anything resembling this fucking hard, as it is now.

While I count my blessings for what great people my children have turned out to be and how sad I am, that I had so little to do with that (if you’re a new reader, that’s covered in many previous blogs).

I’m just really sad that this just seems to be such a fucked up scary world for them to exist in. And I can’t do much to protect them from that, except warn them of potential hazards, not going overboard, as I really don’t want to sully any kind of more positive outlook on life, they may have, compared to my outlook, but at the same time, I don’t want life to give them a big ole punch (ok, many fucking punches) in the gut, that they will hopefully survive (as well as THRIVE)  better, than their mother seemed capable of.

I just don’t want that to be my fucking legacy to them, my legacy to myself and/ or the world, for the matter(s).

And while I’ve accumulated, some (ok, very little) wisdom that normally comes with age and know who I am and am secure with who I am, as well as messed up about how my life turned out, I don’t want my legacy and/or my current identity tied up as “the loving single mother who had the great life experience of having 2 great kids, sharing a plane with Princess Diana (in 1996, also in other blogs) and the screwed up luck of having mental health issues that I was unaware of at the time in 2001, going into a gastric bypass, that I was lucky enough to have a brilliant surgeon who performed a technically performed bariatric surgery that I responded physically HORRIBLY to and nearly died from, and lost my crap and nearly got committed (also in other blogs) who ended up needing a gastric bypass reversal and is now a very wordy medical and mental health activist”…..

YIKES!!! That was a mouthful!!! It’s also the reason why the owner of this brain is not on Twitter, very much. Let alone social media (which I’ve written other blogs about) very much anymore.

I get that in this wordy ranty blog of mine, it’s taking me now 1100 words to make a point/s.

And like no one, except for me (on occasion) has that kind of attention span in 2017. And most people don’t have the time or the inclination to dwell on matters of this nature, even though as UNRELATABLE as most of my blogs are, to most people, I apparently resonate with quite a few, as my blog has been read in 87 countries (fun fact!!!) and 6 continents (Seriously, WTF, Antarctica, don’t people dwell about serious shit at 3 a.m, too???).

Apparently, some of my blogs, such as my most read blog, to date which the “The Project Harpoon People Can GO Fuck Themselves” (way to go ME, for keeping it classy and concise, right??) that I wrote 2 years ago, which I found myself the target of a group of haters on a site called Voat called “FatPeopleHate”  that popped up after the Harpoon peeps got shut down on Twitter, that I found a few weeks ago.

It’s not the first time I had found myself a target of haters or Fat Acceptance hatred. It was the first time of being eviscerated by a large group of people (1100 to be exact, holy shit, right???)  too mean, stupid and hateful to find out anything other about me, than I am wordy blogger who blogs about Fat Acceptance and had a gastric bypass (that and a bunch of other stuff about me, was in particular blog) that I apparently epically failed and was a bitter, ugly, fat as fuck 500 lb ugly chick who can’t write a simple sentence. And was hiding behind a blog.

Cause it’s not like I have full body pics from different times in my life to current times that are PUBLIC and can be found in about 2 seconds, when doing a search engine on me or my blog name, which I actually do have. And it’s not okay to body shame anyone in the manner they shamed me, regardless of how much I would weigh.

I guess that serves me right for finding that group, when “Googling” myself at 3 a.m…

I’m at  almost 1400 words (FUCK!!!)  and I’m finally am going to make my points!!! YAY!!!

I still at rotten overripe,oversized  and old age and person (by weight and looks) at an average size 14 and 47 1/2 in age,  get judged way more for what I look like and what I weigh (depending how fat or not fat enough, depending on who you’re asking) than anything I ever fucking  did or anything I ever fucking said.

By both people who know me well and people who don’t fucking know me at all. Or people who’s responsibilities are to know me better and/or not judge me (i.e. medical professionals/see past blogs on “md-ptsd”, although I advocate for clinically trained medical and mental health professionals, as they are their essence, human beings).

I get my own barriers and my unique barriers in resolving some of my issues. I even have the understanding of others barriers. And have empathy for most people.

EXCEPT for fucking  murder/suicide perpetrators, rapists, pedophiles and people who hate on any class of people for any reason, whether its on me or others and I can live with that.

I’m just having so much fucking trouble adapting to a world, that seems as it gets so technologically advanced, people become more scary and uncivilized to me. And I can’t do anything about that, other than to bring awareness, that while I know my own issues, that it could help, with removing stigma about so many things, for others to be aware of their own issues that could possibly interfere with others right to a safe and peaceful enjoyment life, too.

Not just for my sake. But for those who I love the most (i.e. my children) and so many innocent others, where we at a time, never had so much that should unite us, but is also dividing so many, at the same time.  Or that HATRED is uniting people, way more than acceptance (and again, if that doesn’t work, try apathy, yes, I said apathy not empathy. you don’t have to like, let alone love on something you’re predisposed to hate on, but try to at least be indifferent, OK?) should be and how terrifying I find all of this to be.

(see, for the 2 of you, non-haters, the above 5 paragraphs is the worthwhile reason I wrote this blog/you were rewarded for your patience)

How the FUCK do we FIX that!?!?

If you know, feel free and tell me, so. Try to be respectful about it, though, OK? I don’t go either in others online or offline spaces to make them feel unsafe. Either intentionally or unintentionally (though you now have a current pic, of what I look like, if you see me out and about). I know that this obscenely overweight smoking redhead does her fair share of scaring people, unintentionally, when out and about, in Downtown Minneapolis where I reside (which if that’s the case, stay home, because I’m definitely not the scariest thing  that you’ll encounter down here), I respect the right of others peaceful and safe enjoyment of their own lives, both in their private, public, offline and online spaces.

And wish that fucking everyone realized that everyone has a right to that. And now, over 2000 words, later, I made fucking finally made my point/s.

Note: If the rantiness and wordiness of this blog didn’t give you the clue, that I’m absolutely not going to give a shit, let alone post anything that has no resemblance to my “agreeing to disagree” respectfully stance, don’t waste my time or your own, by sending me something that I won’t read and I won’t publish, both in hatred of me, or any other.

 

“MD-PTSD”….When doctors do more harm than help…

May is Mental Health Awareness Month, and I hoped that the next blog that I would write, would be in the realm of activism regarding mental health,  not talking about another devastating encounter with a new physician.

I admit that I  not an easy patient to treat. As I’ve said in previous blogs that my disabilities make it hard to express myself in logical sequence of order and in complete thought processes, which can make me difficult to understand.

It’s compounded a bazillion times, between anxiety, due to the fact I do have mental health issues, I have temporarily abused drugs, twice, in my life, that I’m quite forthcoming in this blog about that and the labeling I’ve experienced.

I had seen my long term PCP 2 weeks ago. Because we were at an impasse with my medication management, I had agreed to see a pain management specialist to give insight to the both of us, of what would be the best course of action.

As my physician didn’t feel comfortable increasing my dosages and I metabolize meds or have bad side effects to so many medications.

Or they just don’t work at all.

I was able to get into pain management today. I had anxiety of course, which I explained and it was hard for me to be concise.

While the pain management specialist was forthcoming about that she didn’t necessarily agree with my medication regimen, she didn’t agree or understand that after all the doctor visits I’ve had in my life, in the last 10 years between mental health and my gastric bypass complications, that I at this point didn’t want to see a bunch of doctors again and because of the severity of side effects from so many drugs, I didn’t want to try any new medications.

Nor did I want to be taken off the medications that I was currently on.

It was a long intake appointment with the understanding that while she didn’t agree with my being on opiates, that she’d leave that up to my long term PCP and she said, very clearly, that  she wouldn’t interfere with that.

So I did shoot off my prescribing physician, a few hours after I got home, a message of what transpired in my visit with her, while it was fresh in my mind, as I knew that it wasn’t a stellar visit for either one of us.  I detailed what she agreed with my physician, and of her urging me to be under the care of clinical mental health professionals and follow pain management modalities .

Unfortunately for me, I took her at her word that she said she would NOT interfere with my doctor continuing on my current medication regimen. That she appreciated as a pain management specialist, that I am concerned between having mental health issues, that I don’t want to have addiction issues and I would rather not be medicated at all for pain then risk addiction and becoming either a prescription drug addict or trying street drugs, something I’ve never done.

I try to treat myself, from a patient perspective, because I have an addictive personality and mental illness, of knowing that could be the case and it’s a mixed blessing that opiates don’t work as well as they should, because if they did, my circumstances could be a whole different story, and I’d have full blown addiction issues, which I don’t, but it’s nothing short of a miracle that I don’t.

Things that I’m completely honest about. Among other humiliating things in my life.

So imagine my surprise, after shooting my long term physician,  a recap of my visit, tonight, then deciding to check out my after visit summary from my appointment this afternoon, that not only did she think I was somewhat a mentally unstable non compliant  hypochondriac but that she was recommending I get taken off my medications.

Which is a complete contradiction and LIE, from with her at the end of my appointment clearly telling me that she would not interfere with my medication management being done by my long term provider.

Unfortunately for me, it’s my word against hers, a physician.

I’ve had doctors tell me, straight out,that they think I’m a drug addict. I’ve had ER docs when I’d be in the ER for my gastric bypass complications, at Fairview University Medical Center,  even bringing my meds and being compliant with controlled substances, having a ton of them, in their bottles, of them thinking I was drug seeking, when I wasn’t looking for drugs, but diagnostics such as with the pesky intractable projecile vomiting blood due to my ulcers both prior to gastric bypass reversal and after it.

Just based upon the fact I was a bariatric patient with my one and only suicide attempt, trying to use controlled substances to intentionally overdose, that’s explained on my 1st blog on here, in greater detail .

As well as being honest about an inability to be compliant on non controlled substances like ibuprofen (which I didn’t take much of prior to my gastric bypass reversal or of meds like Imitrex, PPIs, and meds in other therapy classes, other than controlled subtances, because I metabolize medications so bizarrely).

Which I’ve been quite forthcoming with providers as well on this blog. There are shades of grey, with patients’s prescription drug use. I’m obviously not compliant with most meds, it’s impossible to be, because my tolerance to so many meds, in so many therapy classes, not just with narcotics, is so high. But I by no means habitually abuse controlled substances, something that she said herself and somewhat congratulated me for, towards the end of my appointment.

Both unfortunately for me and HER, the pain management specialist I saw today,  I did do a Google search before my appointment, to get an idea of her medication philosophies (usually pro Butrans, something she thought I should consider, but apprently not, given her recommendation to my long term provider).

I also found that she nearly had her OWN license suspended due to drugs. Almost 2 years ago and the conditions of her “stay of suspension”, so that she could keep practicing medicine. Her conditions of being able to retain her license, which she is now under, is the fact she can’t be in possession or write a script for controlled substances for 5 years, in addition to other requirements for her to retain her  license and/or be eligible to apply for losing those conditions.

I don’t take any satisfaction in that. Both as a patient and as an advocate who’s trying to de-stigmatize and create dialogue about drug addiction amongst both providers and patients.

As well as in doing all the research I had to do past blogs, as a medical activist, as well as make an informed decision about my medication management I’ve thought about discussing physicians who struggle with drug addiction and trying to de-stigmatize that, too.

Because I fully am aware and sensitive to the fact, that physicians are patients, too.

It’s absolutely  NOT  okay, what I was put through today by her. It’s now going into a weekend.  I can’t talk about this to my own provider, until early next week. I did write a scathing message to the pain management specialist about her lie, and I am now  going to  be filing a grievance against her with the hospital system. And also against the hospital system, themselves.

Which I’ve talked about “md-ptsd” and I have filed one grievance before, with that hospital, which is in another blog.

I’m just beyond stunned, of  the hypocrisy that the hospital has, as well as that provider. They have a a more stringent standard of expectations on their patients, that they don’t even have for their OWN physicians. As it’s a travesty that my suicide attempt and being mentally ill, that history is held against me, apparently for the rest of my life by any provider, but her own isn’t?

How is that ethically fair? To not only as me, as a patient but any other patient who is seeing this physician, have any chance to be treated ethically and honestly, as she has bias, in addition to her own mental health issues and addiction issues  that create an inability for her to be effective of in providing fair  care to her patients.

Especially, especially, ESPECIALLY given the specialty she’s treating patients….

Lisa definition of “md-ptsd” (a “Lisaism” you won’t find in DSM V) – extreme psychological and physical distress of seeing clinically trained medical and mental health physicians, due to my being labeled as drug seeking hypochondriac, post epic mental health breakdown and suicide attempt in 2008. But I have also mentioned that I was drug tested prior to being put on opiates, during ER visits, since I had my gastric bypass.

So now, it’s made my “md-ptsd” expotentially  worse. I don’t love when doctors treat me like crap. That’s why I rarely seek medical attention, any longer. What I usually did in the past with unpleasant encounters when I’m being treated clearly with bias, due to having mental health issues, is I leave. I’ve left ER visits, including ones that I needed further attention. I’ve left appointments in the middle of a visit. I can be mean and not mince words, when doctors treat me like an unstable drug seeking hypochondriac, but I only use words and leave, if I’m going to be reactive (which most of the time, I’m NOT) . That’s it.

You want an example of that? Certainly. I’ll say to a doctor when they come off condescencingly and judgemental that I’m a mentally unstable and drug seeking hypochondriac with maybe other bias towards me (such as weight and being a cigarette smoker) that I’ll say “Wow, I didn’t know Walmart had a school of medicine!!!”.

I’m appalled and devastated, though that a pain management specialist with her own drug problems would do that to a patient who admitted everything I’ve said in this and in past blogs, would lack empathy and lie to me.

I’m devastated that I can’t trust most  doctors not to label me for the rest of my life, given my complicated issues with compliance of non controlled substances due to how bizarrely I metabolize most medication or have severe side effects.

I’m incensed as an activist that other patients might have gone through this and they don’t have a voice. I know almost 9 years ago, when I was acutely suicidal and in so much physical pain and had mentally disintergrated, that  I didn’t have a voice and no support. I write this blog, so that other patients don’t nearly lose their lives from being treated this way or have themselves AND their care compromised due to bias.

I’m hoping that if anyone has gone through this, they will message me privately, if they don’t feel comfortable commenting on my blog.

But I am going to fight back, an ethical fight. By filing a grievance and while I said in my very concise message to her that I hope she loses her license, I hope really she learns from this and at least gets reprimanded.

Although if she doesn’t learn from what she did to me today and has done that to other patients, maybe she should NOT be practicing medicine, any longer.

Because no mentally ill and medically disabled patient who’s been as forthcoming with providers, should have to go through what I keep going through with most physicians.

Actually, it’s been my hope as an activist and blogger, for years,  to encourage honest dialogue between patients and providers, whether mental illness is a factor or NOT, that patients aren’t necessarily penalized with non compliance of ANY medication.

Not only does that increase the risk of patients LYING to their doctors, if they are abusing drugs, it puts them at risk of getting involved with street drugs and the risk of safety and or accidental overdose and addiction to them.

And I didn’t fight so hard to stay alive and try to retain what’s left of my sanity, to let a doctor do something so unconscionable like what was done to me, today (It’s still  5-12-2017 in MN), but I’m going to try that some greater good comes out of it.

For both patients AND providers.

Not just for myself, but for many patients who experience bias and compromised medical and mental health care because of bias that physicians carry due to mental illness and other still stigmatized patient disorders.

Wish me luck…

Note: I have no problem publishing differences of opinions, if stated respectfully. And unfortunately my normal disclaimer of “seeking professional clinical trained professional guidance when in medical or mental health crisis”  doesn’t apply, because I’m not at that point but I’m seriously distressed that my anxiety is in overdrive and my medical care has been compromised by a doctor that knew fully my history and lied to me that way.

Especially given how vulnerable I was due to my medical health issues at that appointment and my mental health issues, as it was difficult for me to get to that appointment with my barriers, as I was exhausted physically and mentally frazzled due to some scary encounters on 2 crappy local buses and walking part of the way in the sun, which I have photophobia.

Again, I own what’s multiply frustrating by me, for ANY provider, including the most non biased clinical professional, of what it’s like to treat me. I’m not a fun patient to treat and I can get defensive. I’m wordy and all over the place. But I tell new providers that those are my barriers, from the start.

And the truth is, most patients are vulnerable, in some way, when seeing a provider, especially given all the factors that played in my visit.

Also,  I don’t believe all doctors are bad. Largely due to my long term physician, where we have a stance to agree to respectfully disagree, given what I’ve been through with mental health and having weight issues even with my needing a gastric bypass reversal.

And I realize other Fairview medical professionals who I know are excellent and ethical physicians, as well as other physicians from different hospital systems both locally and globally.

But regardless of a terrible experience with a doctor, I’m going to ALWAYS recommend that if a patient-provider relationship is not working for a patient, that they try to get help from another provider, whether in acute crisis or not.

Just please forgive me for being kind of a hypocrite about not being too terribly excited about seeing new doctors, in the short term, given my circumstances.

Also note: Unfortunately, I had to do some major editing, 10 hours after I first published  this, because I was so frazzled between being in a lot of physical pain and heightened anxiety, which was was made so much worse, after her saying one thing to me and a few hours later, she completely saying another, as far as her final recommendation would be, made this not as clear as I would’ve liked.

This still isn’t clear, due to the fact I am a disabled blogger who writes about disability and bias. But I feel like I’ve honestly and better presented a fair description of what I go through as patient, but at the same time, being fair with providers who have to treat me.

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