It's not what you are eating, it's what's eating you…

Archive for the ‘WLS complications’ Category

“It’s NOT fair/Bad Example”……

lisa1010smoking

You wanna bad example??? Or examples of things NOT being fair…

I’m not writing this blog for my subscribers, it’s to respond to comments regarding my weight, where for a refreshing change, as it applies to some in the bariatric surgical community.

Versus the “fat people” hate, I’ve been getting lately…..

Here are your trigger warnings: I talk about intentional weight loss, so if that it’s a trigger or profanity, please don’t read.

HOWEVER, if you’re like some weight loss surgery peeps who like most people can’t figure out how someone almost 16 years post gastric bypass keeps off some weight (a little over half, at this point) and are confused what my 2nd bariatric surgery was, I’ll make it crystal clear and through in some proof, and I’ll hopefully I’ll NEVER have to blog about this again.

So, I’m minding my own business, today (like I do EVERYDAY) . I’ve been homebound last couple of days due to not feeling well, when I get an email regarding my gastric bypass “reversal”.

Well it was an email reaming me out by someone who had bariatric surgery around the same time that I had my reversal and was calling out me out on the fact that I have kept off some weight (at this point over 1/2 excess and regain, which by bariatric surgeons’s standards makes my gastric bypass, a SUCCESS, as the usual universal standard for bariatric surgical success, is keeping 1/2 excess weight post operatively…Heh)  and they had gained all their weight back by their 4th year post operative gastric bypass  and was looking to have a revision, even though they said they had been fairly compliant.

And had found me both on ObesityHelp.com and my Facebook page and had an issue that I could exercise and eat what I want, but that I was playing with fire, eating carte blanche and ruining my surgeon’s efforts to not only help me once, with weight but TWICE. As they didn’t believe I was reversed, but revised.

I am not saying the above with any judgement, as far as weight gain, post operatively. I know from being in the weight loss surgery communities now, for almost 16 years there is so many factors, that play into weight regain.

As well as my own experience with gaining my almost all my weight back, starting almost 7 years post gastric bypass due to psych meds.

The specifics and timetable of complications, regain and “reversal” are covered in many blogs on here.

I usually support the weight loss surgery community as a long term peer, best through OH.com. 90% of what I have to say is to help others, is received positively, including and especially from OH.com staff. The other 10% is really negative from fellow bariatric surgical peers, purposely misconstrued because I think my “reversal” status, if a bariatric patient can believe it, scares the HELL out of them, and that I get, if they are not emotional terrorists about it. Or my issues make them feel better about themselves, which makes them an emotional terrorist, picking on me, for no reasons.

While I support people who’ve had complications and/or reversals , through my blog, Facebook and OH.com, OH.com allows me to give advice when people ask for it, as a long term peer, even when they didn’t have complications, but the many different life adjustments that happen life long post weight loss surgery.

And UNLIKE most of my peers who’ve had nearly life ending and life ruining complications, I’m weight loss surgery positive, with ALL the weight loss surgeries, including gastric bypass.

Because while I know people who’ve died waiting for a serious medical intervention for bariatric surgical complications, I also know people who died for weight related health reasons who died WANTING, more than anything, bariatric surgery.

This is what I don’t understand. NO ONE is forced at gunpoint to read ANYTHING I write on the internet.

I go out of my way, for free, given all this free time I now have, that I NEVER asked for, due to multiple complex medical, mental and cognitive disabilities, to try and help people, the majority of time I’m on the internet.

I admit, I wasn’t perfectly compliant. I was a moderate smoker, at the time of my gastric bypass, who NEVER quit. That’s it. I didn’t drink alcohol, I take/took my vitamins, ate with compliance and exercised.

I didn’t ask for a gastric bypass reversal, which is what I had. I had to have one to save my life and to maintain what little life that I would have, should I live through my complications, should the reversal work.

And guess what??? The only thing that is not even guaranteed, is that one will most likely live through their reversal vs. die from their complications. Or have somewhat of a better health outcome, because no one goes into bariatric surgery either thinking they will have complications or weight of a starving person, or in my case, where I was heavier than most people reversed, the labs of a starving person, multiple complications and a primary reason for reversal was so I didn’t internally bleed to death.

And before any weight loss surgery peeps blame me as a smoker, while I don’t advise smoking, I know people who smoked a lot and drank a lot and never had a G.I. bleed.

I don’t go to anyone’s spaces on the internet, tell them what they are doing wrong with their life, how they should look, behave and weigh.

All I’m asking is for the same fucking courtesy…..

You wanna know what’s not fair, as it applies to me, as well as my family, is that I was compliant.

That I should’ve been known as a bariatric specializing Certified Personal Trainer and successful small business owner who was a mother of 2 and loves her kids more than anything.

Not the trainwreck that my life became post gastric bypass, epic nervous breakdown and suicide attempt in 2008, that makes me NOW, known as the wordy reversed chick.

I will try to help almost anyone, with anything I can, as far as my time, to help, restricted to online.

But please don’t be a bariatric surgical peep telling me that life post operatively from a gastric bypass perspective, was fucking more fair to me, it was NOT. Even though I’ve heard stories and supported people who had it worse than me, and if they lived, they don’t go around telling others how unfair it was, compared to other bariatric surgical outcomes that didn’t have complications. Or people who had not as many major ones.

Not to mention those who did die from their complications.

Not all reversed gastric bypass peeps can eat like I can. And guess what, I can’t eat carte blanche, but I can eat somewhat normally, after almost 7 years post reversal and that I’m grateful for.

And am not going to apologize for that. Or living the little life that I have, without micromanaging my weight and what I eat, for the rest of my life.

My bariatric surgeon in early 2010, during my 1st hospitalization of that year, when I was begging for a revision, wouldn’t revise me, due to the extent of my complications. 6 months later when he brought a reversal to save my life, he made it clear, that was my only choice to live and while he never made one negative comment about my weight (as he understood meds played into my enormous regain, without being able to eat much or keep down what I ate, due to those bleeding ulcers).

As well he NEVER suggested any type of non surgical weight loss treatment, but did it make it clear, that if I’d gain a lot of weight, I’d most likely be ineligible for ANY of the bariatric surgeries, regardless of how much I weighed (if I’d become morbidly to supermorbidly obese) or if I’d develop co-morbids, but I was more at risk for dying due to how I responded to a perfectly performed rny.

So that’s why I make some effort to keep some of my  weight off. And don’t feel like I failed the world at large or the bariatric surgical community that I’m not thin, any longer.

I’m really fucking sick of having to explain all of this. Over and over again.

And of all of the judgement people have NO problem throwing my way.

I get that there are people out there, who have to I guess blame, bully and bother complete strangers that NO ONE is forcing them to pay attention, to.

I’m not even fucking asking, for people to pay attention to me.

IF you really care about what’s unfair, how about kids who get cancer and killed in schools??? Or about both children and adults who lose loved ones due to illness, accidents, injury??? Which is what I’m kind of really stressing out about, mostly. Among other things. I live 2 blocks away from a level 1 trauma center, which I hear the sirens all the time.

And here in Minneapolis today, an innocent person died due to being at work and people were injured when a school had a gas explosion. And it feels worse to even have to think that if that gas explosion occurred 6 weeks from now, it would’ve been catastrophic.

So hopefully that clears up how I feel about people having no problem harassing me, in this case about my gastric bypass reversal but trying and being able to keep some weight off.

And if you don’t believe I had a reversal, here you go:


There’s no coding for gastric bypass reversals. The above should tell you anyone, even though it’s really none of their fucking business, and certainly not to judge, if discredit, my medical history, that I’ve only been forthcoming about my medical and mental health issues to help others.

Although if you’re going to do something so shitty, like others do to me about my reversal and regain/keeping some weight off issues, better to do it to me, than to someone who’s possibly in both medical and mental health crisis and you could seriously emotionally harm.

I’ve lived through enough shit that while I don’t love all the inaccurate assumptions about my life and life choices, I’ll be okay.

Someone else, though, may NOT be. Knock this kind of shit, off……

Seriously!!! For those who do this kind of crap, shame on you!!!

Note:  You can’t defend the hate and hurtful comments that I and others like me, receive in these instances. Don’t even try. The only reason why this is being blogged is that I’ve gotten enough crap about all aspects of my weight and bariatric surgical outcome and I”m really fucking sick and tired of it.

And have a right to defend myself and others like me, who may not have a voice……

And if for whatever reason, people can’t see how toxic they are, when they tell people who didn’t ask them for input, about why someone, post operatively is able to keep weight off, when they can’t, feel free to ENJOY(for the wrong reasons)/RESENT/THINK I’M THE UGLIEST WOMAN WHO’S UNFORTUATELY FOR YOU STILL ALIVE of the pics of me living my life and what I look like to being okay looking to horrifically sick, when it’s been HELL to life when it was great, but at least I’m ALIVE (pics, at all different weights in the last 2 1/2 decades), in my previous blog, that was meant for those who hate on me, cause I’m too fat….

Also note, when a blog that I really shouldn’t have had to write, requires me, to go into my medical records and it’s something that’s painful for me (also discussed in many other blogs) for an hour to hunt “proof” of having a gastric bypass reversal, I had to edit blog within 90 minutes of publishing, for clarification of intent….

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“State of Misgrace”……

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(pic of me taken at Downtown Minneapolis Target) 7-1-2017.

Here’s what Google and search engines terms on WP tell me what you wanna know about me:

IF you’re a fat person hater (more about that, in THIS blog), Yeah, I am fat as fuck, over 15 1/2 years after gastric bypass surgery AND my sentence syntax still sucks, as well as YOUR search engine skills (and YOUR psyche) really SUCK, as I’m not hiding on social media(um ever hear of Facebook where my profile and pics is public and there’s like 2 people with my name out of 2 billion and only one “unstapledlisa on the planet, you dumb hateful fuckers) , this is far from the first/current full body pic, that you’ve managed not to found out about me, or anything else “hateable” about me.

IF you’re a weight loss/weight loss surgery peep who hates on people in the community (many of you don’t, that’s why I still co-exist in the wls communities :)), I ALREADY know you won’t EVER be like me, with complications and more importantly, that you won’t ever gain ANY of your weight back, like me AND at 2 1/2 years status post of weight loss surgery of your choice( the average length of time post surgery of my community of wls haters) , you ALREADY know everything, so congrats on both your XXX lbs gone FOREVER and being a bariatric surgical PRODIGY!!!

And fucking FINALLY, if you’re a Fat Acceptance advocate, I still defend my right to lose weight and anyone’s elses and find thin bashing STILL just as repugnant as fat bashing and/or not accepting and being respectful of people’s right to do with their OWN bodies, their business, so yeah, I’m epically failing as a FA, too.

NOW that we got the fun of BODY POLITICS outta the way, wanna talk about just good ole fashion “normal” (heh!) politics????)

***Trigger Warning/s: Even though this blog is more of an update/personal nature blog than activism, because I talk about serious subjects, even when I’m venting/ranting, which if a picture explanation, is just THAT wordy and ranty, I have a feeling that this will be much more of a “fun” blog to write, than it will be to read.

It’s too bad  I can’t rent my blog/me out, as a sedative.

HOWEVER, even when “venting” , I talk about serious subjects and sometimes when NOT in “activist” mode, make a little fun of them (my own issues). IF you’re easily triggered by serious topics and/or are a danger of hurting yourself or others, PLEASE seek professional help in acute care facility for evaluation and treatment. Also, if you’re triggered by profanity, please don’t read. Thanks!!!!***

Okay, with above business being taken care, I’m kinda pissed that I couldn’t title this blog “Fuck You 2017 and Fuck You, 47th year”.  Like I did with my birthday blog from last December. Well, I mean I could, it’s still a free country (no,not really) and there is still freedom of speech (no, not really, EITHER).

It’s more like there’s consequences (depending on who you are and I think because of KARMA (which I’m still NOT sure I believe in) or not, depending on who you are, or who you aren’t.

Or a scary amount of disproportionate consequences (or not) from your actions or lack of actions, regardless of how well meaning, misguided, to the downright evilness of intentions, depending on the person.

That’s the FUCKING problem, I’m dealing with, nowadays. I know what my problems are, genuine and irrational. I know how lucky I am, in a lot of ways. I’m still ALIVE, everyone I love the most is still ALIVE and my life is NOT the LIVING HELL that it was in 2006 to 2011.

But as the oldest and ongoing winner of the Ms. “has a fucking frightening lack of responsibilities in the” Universe pageant, my life ain’t the fucking bowl of cherries, it should be.

Or it’s one that I keep choking on the pits, so to speak.

When I think of my life, exactly 14 years ago, I was a full time employed single Mom of 2, with a great new baby girl and an awesome almost 11 year old son, who just returned back to work, after a 3+ month maternity leave (DAMN, I USED to be really good with money, among a zillion other things, then) my life wasn’t anything resembling this fucking hard, as it is now.

While I count my blessings for what great people my children have turned out to be and how sad I am, that I had so little to do with that (if you’re a new reader, that’s covered in many previous blogs).

I’m just really sad that this just seems to be such a fucked up scary world for them to exist in. And I can’t do much to protect them from that, except warn them of potential hazards, not going overboard, as I really don’t want to sully any kind of more positive outlook on life, they may have, compared to my outlook, but at the same time, I don’t want life to give them a big ole punch (ok, many fucking punches) in the gut, that they will hopefully survive (as well as THRIVE)  better, than their mother seemed capable of.

I just don’t want that to be my fucking legacy to them, my legacy to myself and/ or the world, for the matter(s).

And while I’ve accumulated, some (ok, very little) wisdom that normally comes with age and know who I am and am secure with who I am, as well as messed up about how my life turned out, I don’t want my legacy and/or my current identity tied up as “the loving single mother who had the great life experience of having 2 great kids, sharing a plane with Princess Diana (in 1996, also in other blogs) and the screwed up luck of having mental health issues that I was unaware of at the time in 2001, going into a gastric bypass, that I was lucky enough to have a brilliant surgeon who performed a technically performed bariatric surgery that I responded physically HORRIBLY to and nearly died from, and lost my crap and nearly got committed (also in other blogs) who ended up needing a gastric bypass reversal and is now a very wordy medical and mental health activist”…..

YIKES!!! That was a mouthful!!! It’s also the reason why the owner of this brain is not on Twitter, very much. Let alone social media (which I’ve written other blogs about) very much anymore.

I get that in this wordy ranty blog of mine, it’s taking me now 1100 words to make a point/s.

And like no one, except for me (on occasion) has that kind of attention span in 2017. And most people don’t have the time or the inclination to dwell on matters of this nature, even though as UNRELATABLE as most of my blogs are, to most people, I apparently resonate with quite a few, as my blog has been read in 87 countries (fun fact!!!) and 6 continents (Seriously, WTF, Antarctica, don’t people dwell about serious shit at 3 a.m, too???).

Apparently, some of my blogs, such as my most read blog, to date which the “The Project Harpoon People Can GO Fuck Themselves” (way to go ME, for keeping it classy and concise, right??) that I wrote 2 years ago, which I found myself the target of a group of haters on a site called Voat called “FatPeopleHate”  that popped up after the Harpoon peeps got shut down on Twitter, that I found a few weeks ago.

It’s not the first time I had found myself a target of haters or Fat Acceptance hatred. It was the first time of being eviscerated by a large group of people (1100 to be exact, holy shit, right???)  too mean, stupid and hateful to find out anything other about me, than I am wordy blogger who blogs about Fat Acceptance and had a gastric bypass (that and a bunch of other stuff about me, was in particular blog) that I apparently epically failed and was a bitter, ugly, fat as fuck 500 lb ugly chick who can’t write a simple sentence. And was hiding behind a blog.

Cause it’s not like I have full body pics from different times in my life to current times that are PUBLIC and can be found in about 2 seconds, when doing a search engine on me or my blog name, which I actually do have. And it’s not okay to body shame anyone in the manner they shamed me, regardless of how much I would weigh.

I guess that serves me right for finding that group, when “Googling” myself at 3 a.m…

I’m at  almost 1400 words (FUCK!!!)  and I’m finally am going to make my points!!! YAY!!!

I still at rotten overripe,oversized  and old age and person (by weight and looks) at an average size 14 and 47 1/2 in age,  get judged way more for what I look like and what I weigh (depending how fat or not fat enough, depending on who you’re asking) than anything I ever fucking  did or anything I ever fucking said.

By both people who know me well and people who don’t fucking know me at all. Or people who’s responsibilities are to know me better and/or not judge me (i.e. medical professionals/see past blogs on “md-ptsd”, although I advocate for clinically trained medical and mental health professionals, as they are their essence, human beings).

I get my own barriers and my unique barriers in resolving some of my issues. I even have the understanding of others barriers. And have empathy for most people.

EXCEPT for fucking  murder/suicide perpetrators, rapists, pedophiles and people who hate on any class of people for any reason, whether its on me or others and I can live with that.

I’m just having so much fucking trouble adapting to a world, that seems as it gets so technologically advanced, people become more scary and uncivilized to me. And I can’t do anything about that, other than to bring awareness, that while I know my own issues, that it could help, with removing stigma about so many things, for others to be aware of their own issues that could possibly interfere with others right to a safe and peaceful enjoyment life, too.

Not just for my sake. But for those who I love the most (i.e. my children) and so many innocent others, where we at a time, never had so much that should unite us, but is also dividing so many, at the same time.  Or that HATRED is uniting people, way more than acceptance (and again, if that doesn’t work, try apathy, yes, I said apathy not empathy. you don’t have to like, let alone love on something you’re predisposed to hate on, but try to at least be indifferent, OK?) should be and how terrifying I find all of this to be.

(see, for the 2 of you, non-haters, the above 5 paragraphs is the worthwhile reason I wrote this blog/you were rewarded for your patience)

How the FUCK do we FIX that!?!?

If you know, feel free and tell me, so. Try to be respectful about it, though, OK? I don’t go either in others online or offline spaces to make them feel unsafe. Either intentionally or unintentionally (though you now have a current pic, of what I look like, if you see me out and about). I know that this obscenely overweight smoking redhead does her fair share of scaring people, unintentionally, when out and about, in Downtown Minneapolis where I reside (which if that’s the case, stay home, because I’m definitely not the scariest thing  that you’ll encounter down here), I respect the right of others peaceful and safe enjoyment of their own lives, both in their private, public, offline and online spaces.

And wish that fucking everyone realized that everyone has a right to that. And now, over 2000 words, later, I made fucking finally made my point/s.

Note: If the rantiness and wordiness of this blog didn’t give you the clue, that I’m absolutely not going to give a shit, let alone post anything that has no resemblance to my “agreeing to disagree” respectfully stance, don’t waste my time or your own, by sending me something that I won’t read and I won’t publish, both in hatred of me, or any other.

 

“MD-PTSD”….When doctors do more harm than help…

May is Mental Health Awareness Month, and I hoped that the next blog that I would write, would be in the realm of activism regarding mental health,  not talking about another devastating encounter with a new physician.

I admit that I  not an easy patient to treat. As I’ve said in previous blogs that my disabilities make it hard to express myself in logical sequence of order and in complete thought processes, which can make me difficult to understand.

It’s compounded a bazillion times, between anxiety, due to the fact I do have mental health issues, I have temporarily abused drugs, twice, in my life, that I’m quite forthcoming in this blog about that and the labeling I’ve experienced.

I had seen my long term PCP 2 weeks ago. Because we were at an impasse with my medication management, I had agreed to see a pain management specialist to give insight to the both of us, of what would be the best course of action.

As my physician didn’t feel comfortable increasing my dosages and I metabolize meds or have bad side effects to so many medications.

Or they just don’t work at all.

I was able to get into pain management today. I had anxiety of course, which I explained and it was hard for me to be concise.

While the pain management specialist was forthcoming about that she didn’t necessarily agree with my medication regimen, she didn’t agree or understand that after all the doctor visits I’ve had in my life, in the last 10 years between mental health and my gastric bypass complications, that I at this point didn’t want to see a bunch of doctors again and because of the severity of side effects from so many drugs, I didn’t want to try any new medications.

Nor did I want to be taken off the medications that I was currently on.

It was a long intake appointment with the understanding that while she didn’t agree with my being on opiates, that she’d leave that up to my long term PCP and she said, very clearly, that  she wouldn’t interfere with that.

So I did shoot off my prescribing physician, a few hours after I got home, a message of what transpired in my visit with her, while it was fresh in my mind, as I knew that it wasn’t a stellar visit for either one of us.  I detailed what she agreed with my physician, and of her urging me to be under the care of clinical mental health professionals and follow pain management modalities .

Unfortunately for me, I took her at her word that she said she would NOT interfere with my doctor continuing on my current medication regimen. That she appreciated as a pain management specialist, that I am concerned between having mental health issues, that I don’t want to have addiction issues and I would rather not be medicated at all for pain then risk addiction and becoming either a prescription drug addict or trying street drugs, something I’ve never done.

I try to treat myself, from a patient perspective, because I have an addictive personality and mental illness, of knowing that could be the case and it’s a mixed blessing that opiates don’t work as well as they should, because if they did, my circumstances could be a whole different story, and I’d have full blown addiction issues, which I don’t, but it’s nothing short of a miracle that I don’t.

Things that I’m completely honest about. Among other humiliating things in my life.

So imagine my surprise, after shooting my long term physician,  a recap of my visit, tonight, then deciding to check out my after visit summary from my appointment this afternoon, that not only did she think I was somewhat a mentally unstable non compliant  hypochondriac but that she was recommending I get taken off my medications.

Which is a complete contradiction and LIE, from with her at the end of my appointment clearly telling me that she would not interfere with my medication management being done by my long term provider.

Unfortunately for me, it’s my word against hers, a physician.

I’ve had doctors tell me, straight out,that they think I’m a drug addict. I’ve had ER docs when I’d be in the ER for my gastric bypass complications, at Fairview University Medical Center,  even bringing my meds and being compliant with controlled substances, having a ton of them, in their bottles, of them thinking I was drug seeking, when I wasn’t looking for drugs, but diagnostics such as with the pesky intractable projecile vomiting blood due to my ulcers both prior to gastric bypass reversal and after it.

Just based upon the fact I was a bariatric patient with my one and only suicide attempt, trying to use controlled substances to intentionally overdose, that’s explained on my 1st blog on here, in greater detail .

As well as being honest about an inability to be compliant on non controlled substances like ibuprofen (which I didn’t take much of prior to my gastric bypass reversal or of meds like Imitrex, PPIs, and meds in other therapy classes, other than controlled subtances, because I metabolize medications so bizarrely).

Which I’ve been quite forthcoming with providers as well on this blog. There are shades of grey, with patients’s prescription drug use. I’m obviously not compliant with most meds, it’s impossible to be, because my tolerance to so many meds, in so many therapy classes, not just with narcotics, is so high. But I by no means habitually abuse controlled substances, something that she said herself and somewhat congratulated me for, towards the end of my appointment.

Both unfortunately for me and HER, the pain management specialist I saw today,  I did do a Google search before my appointment, to get an idea of her medication philosophies (usually pro Butrans, something she thought I should consider, but apprently not, given her recommendation to my long term provider).

I also found that she nearly had her OWN license suspended due to drugs. Almost 2 years ago and the conditions of her “stay of suspension”, so that she could keep practicing medicine. Her conditions of being able to retain her license, which she is now under, is the fact she can’t be in possession or write a script for controlled substances for 5 years, in addition to other requirements for her to retain her  license and/or be eligible to apply for losing those conditions.

I don’t take any satisfaction in that. Both as a patient and as an advocate who’s trying to de-stigmatize and create dialogue about drug addiction amongst both providers and patients.

As well as in doing all the research I had to do past blogs, as a medical activist, as well as make an informed decision about my medication management I’ve thought about discussing physicians who struggle with drug addiction and trying to de-stigmatize that, too.

Because I fully am aware and sensitive to the fact, that physicians are patients, too.

It’s absolutely  NOT  okay, what I was put through today by her. It’s now going into a weekend.  I can’t talk about this to my own provider, until early next week. I did write a scathing message to the pain management specialist about her lie, and I am now  going to  be filing a grievance against her with the hospital system. And also against the hospital system, themselves.

Which I’ve talked about “md-ptsd” and I have filed one grievance before, with that hospital, which is in another blog.

I’m just beyond stunned, of  the hypocrisy that the hospital has, as well as that provider. They have a a more stringent standard of expectations on their patients, that they don’t even have for their OWN physicians. As it’s a travesty that my suicide attempt and being mentally ill, that history is held against me, apparently for the rest of my life by any provider, but her own isn’t?

How is that ethically fair? To not only as me, as a patient but any other patient who is seeing this physician, have any chance to be treated ethically and honestly, as she has bias, in addition to her own mental health issues and addiction issues  that create an inability for her to be effective of in providing fair  care to her patients.

Especially, especially, ESPECIALLY given the specialty she’s treating patients….

Lisa definition of “md-ptsd” (a “Lisaism” you won’t find in DSM V) – extreme psychological and physical distress of seeing clinically trained medical and mental health physicians, due to my being labeled as drug seeking hypochondriac, post epic mental health breakdown and suicide attempt in 2008. But I have also mentioned that I was drug tested prior to being put on opiates, during ER visits, since I had my gastric bypass.

So now, it’s made my “md-ptsd” expotentially  worse. I don’t love when doctors treat me like crap. That’s why I rarely seek medical attention, any longer. What I usually did in the past with unpleasant encounters when I’m being treated clearly with bias, due to having mental health issues, is I leave. I’ve left ER visits, including ones that I needed further attention. I’ve left appointments in the middle of a visit. I can be mean and not mince words, when doctors treat me like an unstable drug seeking hypochondriac, but I only use words and leave, if I’m going to be reactive (which most of the time, I’m NOT) . That’s it.

You want an example of that? Certainly. I’ll say to a doctor when they come off condescencingly and judgemental that I’m a mentally unstable and drug seeking hypochondriac with maybe other bias towards me (such as weight and being a cigarette smoker) that I’ll say “Wow, I didn’t know Walmart had a school of medicine!!!”.

I’m appalled and devastated, though that a pain management specialist with her own drug problems would do that to a patient who admitted everything I’ve said in this and in past blogs, would lack empathy and lie to me.

I’m devastated that I can’t trust most  doctors not to label me for the rest of my life, given my complicated issues with compliance of non controlled substances due to how bizarrely I metabolize most medication or have severe side effects.

I’m incensed as an activist that other patients might have gone through this and they don’t have a voice. I know almost 9 years ago, when I was acutely suicidal and in so much physical pain and had mentally disintergrated, that  I didn’t have a voice and no support. I write this blog, so that other patients don’t nearly lose their lives from being treated this way or have themselves AND their care compromised due to bias.

I’m hoping that if anyone has gone through this, they will message me privately, if they don’t feel comfortable commenting on my blog.

But I am going to fight back, an ethical fight. By filing a grievance and while I said in my very concise message to her that I hope she loses her license, I hope really she learns from this and at least gets reprimanded.

Although if she doesn’t learn from what she did to me today and has done that to other patients, maybe she should NOT be practicing medicine, any longer.

Because no mentally ill and medically disabled patient who’s been as forthcoming with providers, should have to go through what I keep going through with most physicians.

Actually, it’s been my hope as an activist and blogger, for years,  to encourage honest dialogue between patients and providers, whether mental illness is a factor or NOT, that patients aren’t necessarily penalized with non compliance of ANY medication.

Not only does that increase the risk of patients LYING to their doctors, if they are abusing drugs, it puts them at risk of getting involved with street drugs and the risk of safety and or accidental overdose and addiction to them.

And I didn’t fight so hard to stay alive and try to retain what’s left of my sanity, to let a doctor do something so unconscionable like what was done to me, today (It’s still  5-12-2017 in MN), but I’m going to try that some greater good comes out of it.

For both patients AND providers.

Not just for myself, but for many patients who experience bias and compromised medical and mental health care because of bias that physicians carry due to mental illness and other still stigmatized patient disorders.

Wish me luck…

Note: I have no problem publishing differences of opinions, if stated respectfully. And unfortunately my normal disclaimer of “seeking professional clinical trained professional guidance when in medical or mental health crisis”  doesn’t apply, because I’m not at that point but I’m seriously distressed that my anxiety is in overdrive and my medical care has been compromised by a doctor that knew fully my history and lied to me that way.

Especially given how vulnerable I was due to my medical health issues at that appointment and my mental health issues, as it was difficult for me to get to that appointment with my barriers, as I was exhausted physically and mentally frazzled due to some scary encounters on 2 crappy local buses and walking part of the way in the sun, which I have photophobia.

Again, I own what’s multiply frustrating by me, for ANY provider, including the most non biased clinical professional, of what it’s like to treat me. I’m not a fun patient to treat and I can get defensive. I’m wordy and all over the place. But I tell new providers that those are my barriers, from the start.

And the truth is, most patients are vulnerable, in some way, when seeing a provider, especially given all the factors that played in my visit.

Also,  I don’t believe all doctors are bad. Largely due to my long term physician, where we have a stance to agree to respectfully disagree, given what I’ve been through with mental health and having weight issues even with my needing a gastric bypass reversal.

And I realize other Fairview medical professionals who I know are excellent and ethical physicians, as well as other physicians from different hospital systems both locally and globally.

But regardless of a terrible experience with a doctor, I’m going to ALWAYS recommend that if a patient-provider relationship is not working for a patient, that they try to get help from another provider, whether in acute crisis or not.

Just please forgive me for being kind of a hypocrite about not being too terribly excited about seeing new doctors, in the short term, given my circumstances.

Also note: Unfortunately, I had to do some major editing, 10 hours after I first published  this, because I was so frazzled between being in a lot of physical pain and heightened anxiety, which was was made so much worse, after her saying one thing to me and a few hours later, she completely saying another, as far as her final recommendation would be, made this not as clear as I would’ve liked.

This still isn’t clear, due to the fact I am a disabled blogger who writes about disability and bias. But I feel like I’ve honestly and better presented a fair description of what I go through as patient, but at the same time, being fair with providers who have to treat me.

Happy 2nd Birthday, unstapledlisa!!!! And……..

My blog turns 2, today!!!

The blog that I have to say, I didn’t ever think I’d ever get up the courage to write it, even though I’ve done the activism that’s on here, in various forms, since I started actively participating on social media, since January of 2010.

The blog that while I don’t get paid for it and it doesn’t have a high readership, somehow though, makes its way to people who need it and who it helps them. So everything that my children and I went through 7+ years ago, as far as the bad and the heartbreaking, wasn’t all in vain.

I’ve made mention that I actually did join Facebook, after not being online for a year, in August of 2009. I also have made mention, that I had NO IDEA, of what Facebook was, as I was still in the mental health system, after my suicide attempt. And I was quite medicated at that time.

Which today is the 7th anniversary of my suicide attempt. And I didn’t wake up with a great amount of trepidation, as I have on this date, like I have in the past.

Even if there is a recurrent theme, that I haven’t made peace with my past, I’ve still decided to move forward. I may not decide to move forward as far as my children are concerned, meaning, that I’m ALWAYS going to be stuck in the past, and heartbroken, that I couldn’t raise them, to adulthood or be what they needed the last few years they were with me. But I constantly dwell on my past life with my children, just so I don’t lose any more memories of them.

But, I don’t live in my past, anymore. Nor do I let it define me. Or limit me.  Other than what naturally my own disabilities limit me, and I only let them limit me, to an extent.

And  on this 7th anniversary of my suicide attempt, that I survived, as I still was quite sick, medically, certain things bear mentioning, of where I was 7 years ago,  as well as since then, as I can’t even edit my early blogs or even some of my recent ones.

So I’ll recap it for you, in case you missed it.

7 years ago, I woke up in the afternoon, not thinking I’d survive my attempt to overdose on narcotics. I ended up on a psych ward for 34 days (I was on a medical floor the first night under a suicide watch and had an aide who watched me until they moved me to the psych ward). I ended up during that period of time, when on the psych ward, of nearly being committed to a long term mental health hospital.  Instead I ended up in group homes for an additional 15 1/2 months. But I had to go through commitment hearings, which in the end, they “stayed” the commitment but made me a legal ward of the State for 6 months.

But I lost my freedom for 508 days. Which comes out to as 1 year, 4 months and 20 days.

It NEVER gets old, as much in ability that I lost, of what in the most basic of freedoms, that I have now, that I didn’t have in that period of time, even though I was quite medically sick due to gastric bypass complications and spent time in the hospital for ulcers, while still in the group home, that I was in, for the last year  I was in the MH system.

I had nothing, though, in that period of time. Literally some clothes, a few knicknacks that  I was able to grab from my apartment, when I first got out of the psych ward and was in the 1st group home, which was a 90 day intensive behavior treatment group home. I had some clothes and my father gave me an old little tv with a built in VCR..

Which would be all of the possessions I’d have, during the duration of my stay in the mental health system.

I remember in August of 2009, my hearing for my SSDI. That it helped to hear the judge be outraged of what I was put through, as well as what my children were so unnecessarily put through HELL  and was deciding in my favor. I do remember joining Facebook, as I said above, also in August of 2009, but not having any idea of what it was, from my local library, which is the current library I now use. But I still had very little hope, and it seemed to take  forever from the judge ruling in my favor, to get my SSDI and to get my backpay, that would allow me to move out on my own.

It NEVER gets old though, the freedoms I got back. Even with all the abilities that I lost. I woke up this morning, didn’t have to worry about waking up in time to make breakfast, at the group home, which was served early in the morning. And their food was crappy. Or getting woken up by a certain time, to take meds, that it would be proved later on, that had very little therapeutic benefit but that I had serious physical consequences, such as my ulcers getting worse.

It NEVER gets old that I choose what I want to eat. That I have medications that I’m allowed to take, for pain and anxiety and I choose when to take them, no one makes that choice for me. That I can come and go as I please. No one can say where I can go and how long I can be gone for. Which is something I had to deal with, until I moved out on my own.

It NEVER shocks to fail me, the irony, that 2 years after my suicide attempt, that I’d be fighting to stay alive, in August of 2010, trying not to die of a g.i. bleed. That I’d get back my freedom after being in the system so long, to spend most of that time on campus or inpatient due to my complications from my gastric bypass getting worse. That I was waiting 5 years ago, trying to hold on, until my gastric bypass reversal. That while my gastric bypass reversal saved me from acutely dying, I didn’t know 5 years ago, as I hoped I’d get my children back, after I healed from it. However it took me a long time internally to heal. And I was still quite sick, 4 years later, in August of 2011. With projectile vomiting blood and still having abdominal pain, which I had, both after my reversal and for the following year. As well as other medical health issues.

I didn’t know that getting the Mirena IUD, in November of 2011, would be another potential fatal health issue for me. But one I wouldn’t recognize for another 15 months, which I at that point was on the verge of having a stroke, in March of 2013,  still haven’t ruled out a TIA and because I have the issues I do, of when seeing new doctors. Whether they be acute care or specialists.

I NEVER made mention though, in this blog or to very many people , of the nervous breakdown, that I had again, in Winter of 2013. Not knowing what Mirena was playing into that, as well as personal circumstances, getting really bad for me, where I’m choosing not to go into detail of the specifics, but I found myself technically homeless in late 2012 and losing friends closest to me, that was not within the realm of my control. And right  after moving to my current apartment, the enormous amount of physical pain and emotional pain I was in, led me to self isolate, for self protection. Because I knew that if I couldn’t rein it in, that I even if I’d survive physically what I was going through, I’d be mentally in a place, where not only would it be worse, then it was in 2007/2008, but that I wouldn’t recover from it, and I had fought too hard to stay alive, to lose anymore of my abilities and my freedom.

I can’t go into every minute detail, of my life, in the last 7 years. Where the above has major relevance is that being medically complex like I am, certain things, like pregnancy, a perfectly performed gastric bypass, an IUD, things that women go through well, if not thrive afterwards, nearly kills me.

But the relevance, psychologically is even greater. Because what I will do or say as an activist and what I’m willing to do personally, is conflicting. In someways it makes me a hypocrite, but understandably so. I didn’t psychiatric help when I had my nervous breakdown in Winter of 2013. I did everything I could, for the few people who were still in my life, to hide it.

Because I was terrified of ending back in the mental health system. Keep in mind, that I had no prior psychiatric history before 7 years ago. I had my 1st psychiatric hospitalization,  about 2 weeks before my suicide attempt, exactly 7 years ago. But because I honestly didn’t expect to survive my suicide attempt, let alone have to suffer the repercussions of it, with  losing my freedom for so long, I understand better than anyone, who may have multiple reasons of NOT seeking mental health treatment, when in personal mental health crisis.

And while as an activist, I try to push for those to get help. I understand better than anyone, the fears they have of getting help. Because it’s not impossible for me or a few like me, where they ended up in the mental health system, and they could NOT get out of it.

And there’s NO way that I’m EVER going to lose my freedom like that, EVER AGAIN. But I can say as an activist, if your depression is going to possibly be fatal to you, you don’t have any freedom, when you are a prisoner of your mental health issues and have NO peace of mind. The last thing I’d want to do as an activist and advocate, is for someone in fear of losing their freedom of choice, lose their lives, because their mental health issues ended up being fatal for them.

With that being said, what am I going to do today, to celebrate, if anything? Not sure, yet.  But I celebrate my freedom and what the little my life is, everyday. I never take it for granted. And it never fails to delight me, as sad as I am that the best part of my life is over, as far as being a proactive mother who could work and drive and I have NO guarantee that I’m not going to get sicker mentally or physically, I take each day as it comes.

Sometimes that means, I still stay at home, because I’m too physically sick and in too much pain to go outside. My choice. I still have the choice, as I’ve said before, to do that. As well as choose what I eat, medications I take. I don’t share a television with 50 people, anymore. I have my own smart tv. I have this laptop that I can blog from as well as stay as connected or not as connected as I like, with some amazing people I’ve met due to social media, in over the last 5 years. I can read a book or a magazine from a tablet. I can take pictures with a smartphone, that I didn’t even know they existed 7 years ago, just like I didn’t know Facebook did.

I can choose to go out and while I’m not rolling in money, I’m not living on $100 a month, either. I can go out to lunch, see a movie. Go shopping for cute clothes. I can do that on my own,  while even though it’s challenging with my cognitive disabilities, I am up for the challenge and embrace it.

I know now that even if I’m not the same fitness freak I was, 10 years ago, that I can go for an 8 mile walk. I can walk by the old group home I used to live at, which is only 2 miles away and know that I’ll fight for what my best mental and medical health looks like. And that NOBODY will ever have that kind of power over me again like they did between August of 2008 to the end of December of 2009.

I’ll fight the good fight, for what I believe is wrong that happens to other people who don’t have a voice. I’ll fight the good fight that needs to happen, so that people who are shamed for their disabilities, for how they look like, for being bullied for any reason, have a voice and realize that they aren’t alone, and other people not just me, cares. And that while all this advocacy and activism I do now, wasn’t something I planned on doing, 10 years ago, it’s something I’m MEANT to do, now. And I do it, extremely well.

I know now, that I am no longer a victim. And I am doing more than just surviving. But at the same time, I’ve also been hurtful to others.  And while I’m still not an angel, I try not to think too much about those who don’t have my best interest at heart. And I will try in my unconventional relationship with my children, that they always know I love them more than anything, and that I try to support them, as best as I can, currently.

And what was amazing about our lives together as small bonded loving family, is always honored. That what was bad when things were at the worst for me, didn’t happen in vain. That by talking about it, as an activist, helped other families not only get help that they need, but that they didn’t lose their beloved parent due to medical or mental health crisis. Or parents of adult children, who have adult children in medical and/or mental health crisis,  that I’ve helped support and help them gain a better understanding, that this wasn’t anything within the realm of their control, let alone their children.

I’m NEVER going to say that I was grateful for all these unneeded learning lessons. But I am choosing to the best of my ability, to not only survive them, when near fatal, but live my life. And celebrate everyday of what’s good about my life, the people and my circumstances, which aren’t a nightmare anymore, while allowing myself to be sad, of what’s still bad about it. And be proud of myself that I’m not bitter. Just at times, really remorseful.

Happy 2nd birthday, unstapledlisa!!! And a big thank you to whoever or whatever was looking out for me, that I didn’t die exactly 7 years ago. Or 5 years ago. Or 2 1/2 years ago.

Life ain’t grand but it’s good. And I’m eternally grateful for what it is, what it isn’t and who I have that I love the most…

Celebrating Independence day, EVERYDAY…..

” I’d like to thank my lucky stars, to be living here today, cause the flag stands for freedom and they can’t take that away” Lee Greenwood “God Bless the USA”…..

Well in some cases, freedom CAN be taken away…. I will elaborate…

So while the 4th of July, means celebration for so many Americans of when we celebrate our freedoms, that and January 1st, 2010, as well as EVERY day, I celebrate of what it means to be free, but I also personal ruminate, of freedoms lost in the past.

One of the reason’s why I stopped blogging this year, is because when I reread some of my blogs, when I talk about the time I spent in the mental health system, there was inconsistencies. As I would say either 15 to 16 months.

Thanks to a website called http://www.converterunits.com, I plugged in the date of my suicide attempt which was 8-12-2008, and the date I moved out of the last group home I was in (I was in 2 group homes, post suicide attempt. Was in psych ward for 35 days, then from 9-15-2008 til early December 2008, was in a 90 day intensive behavior treatment program. Then I was in a group home for severely mentally ill people from 12-2008 to January 1st, 2010, when I moved out on my own after getting my back pay). I also plugged in how long I’ve not been raising my children now.

I spent almost 508 days in the system, exactly 1 year, 4 months and 20 days, to move out on my own, only to spend an enormous amount of time, in 2010, in the hospital or on campus of it due to my rapidly deteriorating with still having major gastric bypass complications.

5 years ago, in 2010, I spent 4th of July, by myself, as I was still quite sick (and trying not to die from those pesky g.i. bleeds) at home, quietly. My gastric bypass was reversed a little over 2 months later on 9-7-2010.

While I’m missing a lot of holidays as of late, with my boyfriend, in the last year, due to not feeling well (I have seen my children, recently and I’m happy to say it’s gone awesome. Especially with my youngest, who realizes I have complex disabilities and doesn’t take it personally). While I started this 4th of July, at his house, I am now home, as I wasn’t feeling well.

This 4th of July, in 2015, is the 7th one, not being with my kids. Well I was with my children on July 4th, 2008, and have very little memory of it. I remember because we could see fireworks from our deck, in the last apartment we lived together. As I how drove by then, was also, nothing short of frightening, I didn’t them to unnecessary places, as I was a public safety hazard, the last 2 years that I drove, due to my medical health issues.

While I always miss my children horribly, they are doing great. I am happy about that. I am happy that I’m not near death like I was 5 years ago, or in the system like I was for Independence Day 2009.

I am grateful to those who fought for our freedoms and to protect them, such as our military and police officers. I’m grateful to those who I love the most, by taking care of my children, while I had to fight for my own freedoms and then my life, 5 years ago. And I was quite sick, still, from gastric bypass complications AND my reversal, July 4th, 2011. And I’m grateful for my boyfriend and his family, who I spend most holidays with.

For as much as I complain about not feeling well, and I really am in severe chronic pain, most of the time, any crappy day on my own, is much better, than a great day, in the mental health system. Or nearly dying several times and being in a medical facility so much. It never gets old, even the most basic things, after losing basic freedoms of choice, such as what and when I can eat, what medications I can take, where I can go, I don’t have to account to ANYONE other than myself, on a daily basis, let alone, an hourly one.

I still believe after what happened to me, with my mental health issues in 2008, that while I paid dearly, I still think we live in the greatest country in the world.

Happy 239th Birthday, United States of America, and to all and kind of selfishly, to me, let freedom ring.

Wishing everyone a safe and fun, 4th of July weekend……….

NEVER in my WILDEST dreams……….

wish

(Note: Pic above, me in June of 2006)

(“Your Wildest Dreams”/The Moody Blues-No copyright infringement, intended)

“Once upon a time……. ”

Once upon a time, exactly 10 years ago, there was a happy single mother of 2, who was in the process of working to make her dreams come true. For herself and for her young daughter and teenage son, that she loved so much.

That single mother of 2, being me, was in the process of starting my own business, exactly 10 years ago. After becoming thinner and fitter than I could ever imagine, both a combination of weight loss surgery and finding a love for fitness that made me thinner then I could ever dreamed, was in school to be a Certified Personal Trainer, and was writing a health and fitness  program to help those who wanted to lose a lot of weight but not necessarily have bariatric surgery, for bariatric surgeon’s offices. While I had networked with local bariatric surgeon’s offices, to do some consulting, once I’d get my certification, my program, I’d hope to utilize nationally, both selling the programs and subcontracting my services.

I also was an active busy mother who was enjoying her life and her summer with her 2 year old and 13 1/2 year old. While I at this time, was quite sick from recurring gastric bypass complications, which I hid quite well, from most people, that Summer of 2005, it was kind of hard to hide it from my son, who’d struggle with his Mom blacking out due to super low blood pressure and low blood sugar (I ate “healthy” and often to fuel my love of working out and I loved the endorphin high I got from working out intensely) and vomiting quite frequently. All day, every day.

(Note: This is not an anti-wls (weight loss surgery) blog, nor am I anti-wls. This is a personal blog. I have many blogs on here, where I explain why I participate in both the weight loss surgery and size acceptance communities)

By the time, the above picture featured, was taken, in Summer of 2006, I was quite depressed, after feeling so poorly  for so many years, that it was starting to take it’s toll psychologically. 6 months later, from when picture was taken I realized that doing a lot of things, were becoming so hard to do, with the constant daily vomiting, fainting and severe abdominal pain, as well as having had a chronic migraine history that I was applying for social security in December of 2006.

By the time Summer of 2007, rolled around, I was trying not to lose my children, after having a nervous breakdown and a child protection case for hoarding. Because my children and I were so bonded, I was NEVER initially at risk of losing my kids in any way.  My children who I loved so much, and by then for quite awhile, we were all each other’s worlds.

By early Summer of 2008, I was acutely suicidal. After quite a few medical hospitalizations since Summer of 2006 due to my gastric bypass complications and physical pain levels being so high for so many years and my losing both my physical health and by then, what little sanity I had left, I gave up custody of my children to my parents, and tried to commit suicide. Which I nearly got committed for.

By early Summer of 2010, after spending 16 1/2 months in the mental health system (A blog or 2, to elaborate, will be forthcoming in the near future) but I’d been out on my own since January of 2010, I was trying not to die from multiple ulcer perforations, multiple times, that were getting worse.

Never, in my WILDEST dreams and or my WORST nightmares, that I’d think my life would take the turns, it did. Most people don’t live the lives they initially plan on living.  But here, in Summer of 2015, while I’m grateful, that everyone I love is still alive and it’s nothing short of a miracle that I am, my life is still so small, beyond the scope of my imagination.

Never, in my wildest dreams, could I imagine what was amazing about my life, such as my beautiful, funny and smart children, about being thinner than I ever dreamed and hoping I’d have a successful business to even enrich a life with my kids, that was wonderful, even more, was not meant to be. I’d be lying if I didn’t include the 6 1/2 years I was thin, after being heavy and so horribly bullied for it,  my whole ENTIRE life.

Never, in my WORST nightmares, would I ever think that I’d be so unintentionally neglectful of my children who I loved more than anything. Never did I think that I’d live a life that was so physically painful and then emotionally painful, that I’d ever put my children and my family, what I did. That I’d lose the will to live, end up in the system for 16 1/2 months, only to have the fight of my life, to stay alive, in 2010.

And NEVER, did I think, that I’d lose the resilience that I had in the life that was better than I could’ve dreamed of and of my worst nightmares. While I’m still a little strong. I’m still a lot broken, and so sad, and so stuck, of what my life was, from Fall of 1992, when my son was born, to what life was like, 10 years ago, in Summer of 2005, when I still had hope, that as wonderful as everything was, it was still to get EVEN better. It’s not that I’m not grateful for my life and those I love, who I’m so lucky to have, but that I love from afar. There’s just no MORE, or no BETTER, to look forward to. This is IT.

So for the few of you, that have wondered why I’ve taken more internet sabbaticals, why I haven’t blogged much, this year. This is the some of the reasons WHY…. (I am coming to terms with some of it, and am committed to my activism. I just want to make sure, I’m in a good place, to be able to do that from, as it would be irresponsible of me, to do activism when I’m working on personal issues, of my own)

“When the music plays, when the words are touched with sorrow….Once upon a time, once when you were mine….. ”

Note: For some reason, not creepy or sinister, certain songs, that are meant to be sad romantic ballads, some how some of the feelings they invoke, are maternal, not in a creepy way….

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