It's not what you are eating, it's what's eating you…

Posts tagged ‘#coronavirus’

Conversations and actions that shouldn’t have needed the crisis that #COVID19 has presented, to occur…

Important Disclaimers: I am NOT a clinically trained medical or mental health professional nor trained in matters of public safety.

IF you or someone you know is at risk of hurting themselves or others, please contact emergency services, immediately.

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Unfortunately, with the last half of above disclaimer, which as a medical and mental health activist, where I’d include getting medical evaluation and treatment, it’s tricky given the crisis that novel coronavirus has caused in so many ways and on so many levels.

As someone who identifies as a medical and mental health activist, I’ve addressed issues of adversity on all populations of people, whether it’s the homeless or a neurosurgeon.

It’s with the hope to try and provide some kind of comfort as a blogger/activist, with my particular life experience of living life with an unwanted and undesirable “new normal” for over a 1/3 of my life when the last 16 years have been fraught with a lot of medical, mental and financial uncertainty and insecurity.

This way of living is something NO ONE ever wants to be an expert on, especially for as many of us who like most people where they could count on with their life being on some level of good and them being in control for the most part of how good it is for them and those they love.

Until some of us can’t, anymore.

In my case with my circumstances, I didn’t thrive after adversity which is the happy ending which people somehow think they need some kind of inspiration that after the storm passes there will be some big huge rainbow or happy ending and there isn’t one.

It shouldn’t have taken COVID-19 to highlight in such an awful spectacular way of how vulnerable we all are.

There’s been yucky “C” words for a long time that have killed people or changed their lives for the worse, for a long time now that have needed more research for prevention, better management or a cure, such as cancer, cardiovascular disease, cognitive disability/disease,chronic pain, complication, crisis and catastrophe.

Trying to help those when the yucky “c” words and all other bad things happen regardless of what what letter of the alphabet it begins with is something anyone can help with and it’s been heartwarming to see that happening, now on such a grand scale.

However…..Community, constructive communication, camaraderie, comfort, charity and compassion is something we needed long before novel coronavirus and it’s what will help sustain us and be better, after it’s long gone.

I can’t and don’t make a lot of promises, but I can tell you that one of the best things about the digital era, is the ability to find support that will help to get through any crisis.

I’m not promising it will make it easier, it will though help to know that you aren’t alone and others do care.

Important Notes: I cannot stress enough that clinically trained professional help is required for evaluation and treatment of anyone who’s in crisis which those professionals should be consulted and relied upon.

Given though the acute danger that COVID-19 is presenting to humans, as far as getting help in an acute care facility, while others cannot replace that essential necessary guidance, others still can provide valuable support in some form that can help.

Any feedback that is NOT constructive will NOT be published.

What this #mhealthfairview expert interview on #CNN is missing about #coronavirus preparedness that can help physicians, other healthcare providers and responders, to prepare better for themselves, patients and the public…

https://www.cnn.com/2020/03/10/opinions/osterholm-coronavirus-interview-bergen/index.html

Important Disclaimers: I am NOT a clinically trained medical or mental health professional, nor do I have any training in public safety.

I will always encourage any person in medical or mental health crisis to be evaluated and treated by clinically trained professionals in appropriate care facility.

Full Disclosure: I am a long term patient in the M Health Fairview system, who has been less than thrilled with my care by some physicians both recently and long term where I’ve blogged about it.

I’m also an Obese, cigarette smoking, non violent (but not wonderfully tempered when met with a lot of judgement) mentally and medically disabled patient with intractable widespread and localized physical pain, who gets a fair amount of a trinity of prescription medications known for abuse or addiction from one long term reluctantly prescribing physician.

I also have neuro deficits that also make it difficult to be concise, this blog isn’t being written to talk about myself, although it will come off like that at first.

It’s meant to help and I’m not honestly being flippant when I say like the novel COVID-19, it will get worse, before it gets better/helpful to not myself, but to anyone who commits to reading it in its entirety.

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Okay.

Actually NOT okay, on multiple accounts not just personally but concerned as a serious medical and mental health blogger.

So about several weeks ago my lower back pain and sciatica got much worse.

About several months ago my long term physician went on medical leave and I even loathe to talk about it, as to protect their identity, even though I’ve made mentioned of that physician in the past.

In that amount of time which I’ve written about, I had more ER visits in the last 4 1/2 months than I have had in the last 5 years.

First it was Gastroparesis related nearly choking and dying in my bathroom due to uncontrollable vomiting 2 days after Thanksgiving 2019 but being really sick with Gastroparesis stuff the entire holiday weekend and being sick as a fat person still, who had trouble eating and getting fluids in, most of 2019.

Well, Gastric Bypass REVERSAL related Gastroparesis, which for those of us who get it vary symptomatically within that population, as well as those who get Gastoparesis, as they vary, too.

Then I got non diabetic Cellulitis infection that required a ton of oral, IV and intramuscular antibiotics and guess what I got from that?

Clostridum difficile.

This blog isn’t about the state of my digestive system where I’ve already addressed as an activist/blogger the need for longer term followup in Gastric Bypass reversal patients whether or not they end up with Gastroparesis or not.

It’s not even about how stupid but worth mentioning that with my regular PCP who does all my medication management out, that I am being made to go next week in clinic, just to get an renewal of my script for an opiate, as I haven’t had an issue with online requesting meds in any other category even though I’m pretty sure even after a course of heavy duty antibiotics (Vanco) that I still have c-diff.

And here’s where my very unique complex medical and mental health history should help hopefully physicians and other clinical professionals, as well as my history as a blogger/activist who has a 6 continent (the good people in Antarctica apparently know better than to attempt to read my blogs, apparently)  reach about Suicidology and the medical and psychological trauma prior to and after serious bariatric surgical complications can hopefully help physicians and other responders, as well as patients and the public when dealing with novel COVID-19, as far as potential medical and mental health ramifications due to the pandemic, especially in this social media era, as it applies to some of the things that was discussed in above linked video/article.

Yeah, almost 700 words in, and I’m about to make my points, now.

Some of the misguided psychological response to COVID19, is it can’t/won’t happen to me and at least that is being discussed to an extent.

Then there is the issues of bringing up the Obese, as far as novel COVID19 hitting the United States.

Okay, does that mean for all people with a higher BMI over 30, or people who have the co-morbidities that are associated?

What about thin never been of excess weight people who have family history and have diabetes, pulmonary hypertension and high cholesterol and are on medication for it, not just because of their medications but their risk?

How to address that a mandatory quarantine in an acute care facility for those who become sick, also present a potential medical and mental health chaotic danger to physicians, other health providers and responders, in addition to patients and the public themselves, some of it we are starting to see, others you won’t know adverse human response to those circumstance experiencing it, such as suggested in above article?

I’m not, no one in that article is suggesting mass or personal hysteria as a response to novel COVID-19.

But topic fatigue and whole encompassing relentless fear isn’t a good response to the pandemic, either.

I can only hope people need to know, that if there was ever a time, if it’s possible to try in unknowns to tap into what’s good and helpful to ourselves and others, even for those of us who don’t have an “A” game, now is that time.

I may not be the right person to be talking about novel COVID-19, but I think I bring up topics that should warrant further exploration, both immediately and the long term about medical and psychological response to and by and for with good intentions.

A few last things people should be thinking about, whether or not  this pandemic will put them in mortal jeopardy, is end of life wishes, something I’ve discussed in the past, hoping to remove stigma, as blogger.

Such as having Advanced Health Directives prior to potentially becoming catastrophically ill.

Because you shouldn’t wait till a medical crisis to decide important life and death decisions, let alone a matter of life and death decisions.

I have a filed and  updated a very specific AHD, DNR/DNI of not wanting any life saving or life extending measures should I experience any kind of medical crisis (they are void if mental health causes a person to be a threat to their own lives or any other)  over 18 months ago and while truthfully, I think I get treated with more bias than I should by University of MN physicians and the very few physicians I’ve seen outside that hospital system, the U of MN is getting my body, for medical education purposes, as my organs aren’t of any use to any other, when I die.

Other day to day life decisions are impacted for me by disability, and that has to be taken in consideration, if one’s own personal barriers when it comes to having to experience adverse circumstances in life, that are beyond their realm of control.

Again, this blog is being written with the best of intentions to help others.

And I understand that my life circumstances and perspectives are unique, if not a little bizarre.

But, as someone who writes and cares about sanctity of life issues, in and outside of crisis situations, in hopes to conduct myself and help others with dignity and constructively, and it’s my hope it helps others figure out a way that helps themselves and others deal with this, in the most medically and mentally safe way as possible and further discussion on how to help those who are going to be so adversely impacted.

Important Note: Anything that is not constructive to any other or myself will not be posted, I can handle a respectful difference in opinion and welcome that but hateful rhetoric or responses will be handled appropriately and responsibly, so please don’t waste my time or yours by even trying, as no one is forcing you to read anything I write.

And yes, I realize what a weirdly wordy specific title this blog is…

Thanks!!!

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